Almost four months ago, I started treatment for Binge Eating Disorder. Basically, that consisted of taking an amphetamine, journaling about the changes in my compulsive thoughts and eating, visiting my med provider (Sarah) more often, and fighting with insurance.
I’ll start with the ugly and work toward the beautiful.
1. Dealing with insurance is a nightmare of Edward Gorey proportions—decoding the telephone directory-sized formulary, shuffling piles of contradictory paperwork, making my pharmacy do what the insurance company tells me to tell them to do, stopping Sarah from following the pharmacy’s incorrect instructions, filing forms for an exception to the formulary, filing an exception to the prescribed dosage, discussing the exceptions with non-English-speaking Call Center schlubs who have no authority, resubmitting forms, getting Sarah to resubmit forms…
It took all four months to get it straightened out with me double-checking everyone else’s work. This process would make a sane person stark raving (and has. I’ve discussed this with lots of neuro-normal people who ended up screaming on the phone or curled up in a puddle at their pharmacies), so I had to tackle it one little piece at a time.
I’m well aware that insurance companies try to get customers to give up. They don’t want to pay for anything. But, I survived filing for disability. I know this game. And while it was stressful, and I used a lot of colorful language, I got the exact drug I needed and gained even more respect for Sarah. She and my (new) pharmacy—these worthies—stood with me on the battle field. Their loyalty and integrity will earn them a place in Valhalla.
When the zip I got from my pills crossed over into agitation, I stopped taking them. Since I’ve never been very clear about that line (it feels so good to feel good), the symptoms got scary sometimes before I recognized them—like forgetting appointments, or tearing my apartment apart to find a photo I wanted to use, or getting completely overwhelmed by a movie, or driving too fast while texting.
Whenever I woke up to being scattered or dangerous, I stopped. I made myself safe or quiet. I notified Sarah. And I waited. The mania always receded. This is one of the benefits of rapid cycling. I can always count on my mood changing. I just had to take my brain-skillet off the fire of the amphetamines to let it happen.
3. I’ve experienced very little depression since May. Historically, I suffer less depression and more hypomania in the summer, but not to this extent. I checked my old journals to make sure. I expected the Vyvanse to flick me into mania at times, but did not expect the overall shift up in mood. Sarah and I are cautiously hopeful that this trend might continue into winter.
Oh! I don’t want to pin any real hope on this, but what if the Vyvanse could keep my mood from sinking into that suicidal basement come February? Since I’ll also have a caregiver for the first time in my life (from Lutheran Services of Iowa) to help motivate me to keep my apartment clean, this winter could be very different.
4. When I take the Vyvanse, all the compulsive thinking about food goes away. Small amounts of food give me a sense of satiety. I don’t need more. I don’t want more. There have even been times this summer when I forgot to eat. I can’t express how weird that is. I know there are people in the world who lose their appetites when stressed—I thought they came from Pluto. I have wanted to eat while I was puking from the flu.
I’m seeing now how much space food occupied in my head. The absence was unnerving at first—like walking into an abandoned house with just a few sticks of furniture left behind by the previous owners. But, I’ve come to love all this room. And I’m taking my time redecorating.
Whenever I stop the Vyvanse to let manic symptoms settle, the compulsive thoughts return. I feel them crowd in—pushy, rude, overbearing. But I can remember what their absence feels like, and somehow that helps keep me from bingeing as much as I used to. And even then, I don’t punish myself anymore—for being weak, or gluttonous, or just wrong. I have evidence now. Binge Eating Disorder is real, not a character flaw.
5. The final sweet treat is that I’ve lost 30 pounds.
I’ll just leave it at that, because… you know…
I’m on an Adventure.