Daft Trek

Social Services, the Final Frontier.  These are the voyages of one unclassifiable nut-job.  Her ongoing mission: to explore convoluted government gobbledy-gook; to seek out new services that might actually help; to boldly leap over the cracks in the system where no one has leapt before.

ξ

After I finished the Intensive Psychiatric Rehabilitation program in late June, the search was on to find some kind of support that might fill the gap.  IPR wasn’t therapy, but working with Aly for two hours twice a week turned out to be the best therapy I’d ever had.  How can you not go deep and actually problem-solve with that much one-on-one time?  Most participants in IPR spend half their time in groups, but we had trouble finding peers for me (I’ve got so much insight, you know), so Aly and I just met by ourselves.

We both knew no social service could provide what Aly gave me, so we looked at the kinds of support I might find.  She and my therapist thought Lutheran Services of Iowa might be a fit.  I went through two-hour assessments with both my caseworker and LSI, was approved, and started seeing a caregiver in July.

I have a caregiver.  To say I have mixed feelings about that is like saying Emmett is a little nervous (though, here’s a barely-related photo of both guys sitting next to me as I write this with Em combed and smiling).

Together

Anyhoo, it’s taken me all summer to get used to the idea of being a person who could benefit from a caregiver.  When I look at it in terms of what I need to stay out of the hospital, I get it.  But, like everything else concerning my mental health, I don’t fit in the usual categories, so we had to get creative.

Leanne, my caregiver, and I met for coffee once a week all summer at the new coffee house (Yaay! Marshalltown finally has a coffee house!)

Brew House

This was all part of my care plan—to get basic support.  It’s not therapy, but more than friends and family can provide.  For that hour, I get to talk without worrying about my social skills or being reciprocal in any way.  Most human interaction is two-sided.  Conversation is give and take.  And, while Leanne and I do converse, the point is we don’t have to.  For that hour, she’s there for me, and if I need all that time to process, I don’t have to feel guilty, or selfish, or worry about ruining our relationship.  Over the summer, we honed that process to where we’re both comfortable with it.  And it is a true and valuable tool.  Like my new soaking tub, I can relax with Leanne now and just let go.

The other part of my care plan is for Leanne to help me keep my apartment clean this winter.  Since I’m allergic to dust mites, I need a clean living space in order to avoid the asthma flares that lead to bad colds and, often, pneumonia.  And, since winter historically brings more severe depressive symptoms, cleaning (like anything requiring effort) flies out the window.

Halli, the LSI director, told me that their caregivers aren’t housekeepers.  They help clients set goals and work alongside them.  I’m expected to do the real work.  I like that concept.  I asked my sister to do that once, to come over and just help me figure out how to get my place cleaned.  I remembered what a huge help that was.  If I could get used to a stranger coming into my home, I thought that kind of support might help me avoid getting sick so much.

So, last Wednesday, Leanne came over and helped me replace the filters in my air vents.  It’s a big job, I even got the consultation from specialists of air duct cleaning in Kansas City, MO.  All the vents are in the ceiling.  I put filters in the ones I could reach by standing on a chair, but that was five years ago.  Last week, with a real step-stool, we replaced the black filters (ugh!) and got all the vents covered in the hour Leanne helped me.  I spent the rest of the day cleaning the grill on the intake vent (gross!) and laying filter material across that, too.

Intake Vent

Awesome!  Except I didn’t think to wear a mask.  Oops.  Now I’m fighting the very thing I tried to avoid—a bad head cold that will probably go south soon.  I should have known better.  I wore a red shirt that day, and we all know what happens to those guys.

Getting My Breath Back

handmade greeting cards, collage art

The transition from hacking bed-lump to fully engaged routine-aphile is a long, slow process.  There comes a point about two weeks into a typical bout of bronchitis where I lose all good humor and go limp with despair.  The “I’ll never get well—I’m cursed with putrid lungs—Kill me now” kind of despair.  All my clothes are sweat through, all my dishes dirty in the sink, and all I want from the grocery store is junk that makes me even more comatose.  I’m convinced everyone I know has forgotten I even exist.  Even the cats slink away from me and hide in the closet.  It’s not a pretty picture.  The pity-pot is glued to my ass.

But I knew that phase was coming and watched for it.  I knew the chances were good that being sick would trigger bipolar symptoms, which just compounds the fun.  I’ve noticed fluttery spasms of anxiety and waves of depression that drift like clouds across the sun.  They catch me up short, a completely different experience than the sick-too-long slump.  But, so far, I’ve been able to just breathe through all these mental discomforts.  As soon as I could, I drove out to the little lake south of town and walked in the warm October sun.  Everything looks better with that jewel-blue sky above and the golden slant of light blazing against the wildflowers.

This week I returned to my water aerobics class.  The water welcomed me back, as did the folks in class, and even though I’m slow and still hacking, I’m not nearly as weak as I thought I’d be.  Then, I sat at the HyVee cafe with my Starbucks skinny latte and wrote.  The brain is rusty, and I’m exhausted when I go home, but pulling part of my routine back on feels right, necessary, and as cozy as pulling on my winter fleece.

We all carry unfortunate baggage.  I happen to have asthma, allergies and bipolar disorder.  They cause disruption.  I can guard against infection and monitor my thoughts, but they will still show up.  The only real defense I have is in how I respond to their effects.  Health lies in how I push against my old reactions and chose something else.  Something positive.  Something loving.  Recovery depends on unloading as much weight from those bags as possible.

So, tomorrow (my birthday!), I’ll greet my friends in the water.  I’ll climb into my truck, plug in my earbuds, and head for Des Moines where good coffee, a good movie, and time with my meditation buddies will fill my creative well.  The baggage is still there, but I’m carrying it a little easier these days.

Blog Stats

  • 158,670 hits
%d bloggers like this: