Reset

It’s Week 2 of the latest Bronchitis Bout.  Like bipolar disorder, there’s really nothing new about getting month-long lung crud.  It happens.

Sorta amazing, really, this blasé acceptance of whatever the day brings.  I’m not always this cool, but it’s such a gift when I can be.  Seems to me I was raging right up to the point of chills and fever.

A physical shock often resets my bipolar rheostats.  Two weeks ago, I was text-wailing at my friend Lily, taking offense wherever I could find it, and wrestling paranoid thoughts to the mat.  Today, I did laundry and cleaned up cat barf with nary an emotion in sight.

Except a little glee.  I started a goofy spread in my art journal based on something I cut out of an old magazine years ago: “When the going gets weird, the weird turn pro.”  I worked on this one little piece while my laundry tumbled, and it just made me happy.

Sorta amazing, really.

Fury Road

I woke up this morning feeling like—as my friend, Lily, so delicately puts it—dog shit on the bottom of God’s shoe.  Also, furious.  But I pulled on my swimsuit, intending to take it out in the water.  Except I was 90 minutes early.

Fury boiled.

I raced to the nearest salon.  “Can someone cut my hair right now?”

“Yes!” the hapless pixie piped.  “And today all haircuts are $10!”

“Great.  Shave it all off.  I can’t stand it another second.  I’m tired of trying to look like something.”

She did.

And I left feeling like my outside finally matched my inside.  Furious.  And the closest I’ll ever come to looking like Charlize Theron.

Furious helps.  Furious brings the Bad-Ass, which is now in full display.

I roared off to misbehave and brought home two bags full of art supplies. Now we’ll see what fury can really do.

ψ

Muttering

mousy-ladiesI’ve stalled out in a mixed-state depression.  It’s nothing new, not even very noteworthy, but I’m always surprised by how it changes everything.  My perception becomes bleak and twisted, my body slow and creaky.  I miscommunicate and send mixed messages, because every part of my brain is mixed.  I’m confused and confusing.

Depression with rage is so uncomfortable, and so isolating.  I hate everyone.  Or am scared of them.  Ancient resentments and regrets rise up like specters out of unholy ground.  This is the part of my bipolarly existence that sees a life as a hermit as the only option.

I have a couple of mantras during these times:

Keep Your Mouth Shut

It Will Shift Soon

Just Wait

pretty-magazinesSo, I’m muttering mantras.  And looking at pretty magazines.

temp-poldark-poster2And watching Poldark.

 

 

 

And making art.

making-art

 

Lots of art.

Convergence

Events Conspire

Paths Converge

We may Choose to Ignore Them

But, What’s the Fun in That?

It all started with butt boils.

Take a part of the human body rich in adipose tissue, add pressure and heat (as in sitting for long periods of time), and that body part will revolt—or become revolting.  Enough on that matter.

diggingNext came a therapy session where we connected the dots between trauma and food as my drug of choice.  Since my diagnosis of Binge Eating Disorder, I’d set down my shame and guilt about being a Woman of Substance.  I’d become kinder, more accepting of my body.  But there we were, dredging up all that business, and I found myself disappearing.  My hands and feet went numb; a rushing sound filled my head; I seemed to leave my body and drift somewhere behind and above it.

Later, I learned what I’d always called this “shutting down” was technically dissociation—an altered state of consciousness that can include depersonalization, sensory and psychological numbing, disengagement, and amnesia.  Most people experience mild forms of detachment, like daydreaming while driving and losing a bit of time.  The more pathological end of the spectrum ends up Sybil-like with fragmentation of the personality.  It’s a coping mechanism—a way to keep the psyche safe when under attack, whether that attack is real or imagined.

Clearly, I had more work to do with this.  Or, as Megan reminded me, not.  I always have choices, and she is not the variety of therapist who requires excavation of Hurtful Things.

bed-rageSoon after, as I sorted my old blog posts into potential book categories, I marveled at how I once worked so very hard at controlling my eating, how I celebrated small victories and believed I made tiny changes in my behavior.  And then I always gave up, as my endgame of losing weight could never be reached.  I started to wonder if I could ever push gently against the binge eating, if I could find a way to work with it like I’d found ways to work with bipolar disorder—gently, with acceptance and kindness, while still holding the worst symptoms accountable.  I had no idea how that might look, but I opened to the possibility instead of shutting myself away from it.

On my way to Orly Avineri’s workshop in Taos, I started reading Foolsgold by Susan Wooldridge.  In her introduction she says:

I began writing these pages when I decided to make a small collage box each day for a year with what I found on my walks—often the most ordinary, seemingly worthless bits of nothing.  That’s when fool’s gold became foolsgold for me, a field around us, or state of being, where everything can be transformed by our seeing and creativity.  Merged into one word, “foolsgold” describes a paradox, the value in what may seem to be worthless.  Foolsgold reminds us to look beyond appearances, even in ourselves.  What seems to loom in us most darkly may finally be what brings the most light. Everything can be transmuted by attention, play, love.

walkabout-coverI used to walk a lot, then stopped as it wasn’t getting me to the destination I wanted.  If I had some different motivation to walk, like looking for art fodder along the way, I might be able to do it.  I let that idea sit in my hindbrain as I got my self to Taos.

One afternoon, Orly showed us a small art journal her nephew made.  An environmental crusader, all his art is made up of junk with space for sketches and ruminations.  Orly’s nephew had no concern for style, or balance, or making things look pretty.  His art was raw and powerful.  And very simple.

I can do that, I thought.  And as that realization settled in, my body demanded it.

It took a few weeks once I got home to jumpstart idea to action.  But now I have my WalkAbout journal, and every few days I set out with my big zip lock bag and find my material for the day.

hospice-walkChange, even good change, can be stressful.  My rapid cycling has been spinning like a hamster wheel.  Some days the amount of trash among the trees and berms disgusts and weakens me.  I tell myself I can’t go out among all that thoughtlessness again.  But the hamster wheel keeps spinning, and I tie on my purple trainers.  After a couple of weeks of this, I’m learning to wait for fodder to signal me—light on shiny foil, strange lumps, a flash of color in the dunny weeds.  It gets easier and easier.  As does the art that comes after.

tama-wingMy butt likes that I’m moving more.  I make my WalkAbout pages in the evening when my binge eating is most bothersome.

I’m still on an Adventure.

Catching Up

the-captive

After almost three weeks of Clear, Calm Mind, weeks when I made art with quiet joy and dug into the second draft of my book about being bipolar, weeks when decisions made themselves; after weeks when the Dark Times of last autumn faded, the inevitable shift came.

northern-exposureFirst, just a melancholia set in as I  watched the last season of Northern Exposure (like getting weepy over Hallmark commercials).  Mopping up with Kleenex, I would have called myself hormonal if I still had any Girl Parts.  But after the final episode, I felt bereft.  I’d binge-watched all six seasons of the show, and now it was over.  I have a bad feeling about this, my Inner Han Solo muttered.

Later that day, I shut down during therapy.  We hit something big, and it blew all the circuits.  My therapist talked and all I could hear was the teacher from the Peanuts cartoons (Wah-wah-wah).

lala2Yesterday I met my friend at the theater to see LaLa Land and cried through the whole thing.  Not that I was paying attention to what was on the screen.

It takes me a bit to catch up with the shift.  I have to find a little spot of compassion and mindfulness where I can change gears.  What do I need?  What do I have to take care of and what can wait?  I will stay home today and do art at my table instead of going to church and the Writing as a Spiritual Practice group that I love.  I can make this decision without guilt or self-loathing.  It’s what needs to be today.

Tomorrow I will focus on preparing my apartment for the new bed-bug prevention regiment.  There’s a lot to do—vacuum, get everything off the floor, pull the furniture away from the walls.  I don’t quite understand what will be done, some kind of silicon mist, so I need to get as much stuff under cover as I can.  Then, on Tuesday, the cats and I will camp out at friends all day while this procedure takes place.  I’m not sure what kind of clean-up will be required once we get back.  All I know is that I can’t vacuum for three days.

no-need-to-hurryStuff like this is stressful on my best day.  I had found a rhythm with the quarterly bug-sniffing dog’s visits, but I guess Radar wasn’t as accurate as advertised.  Now management has decided on this annual preventative hoo-haw instead.  It’s so disruptive and worrisome.

So, I breathe and try to turn my thinking.  I don’t have bedbugs, but if my neighbors do, I’m at risk.  So this is a good thing.  Proactive.  And only once a year.  I can do this.

And if it’s all I do this week, it will be enough.

Is It Soup Yet?

whisper-of-vomit

Sometimes I wonder if it’s time to take this blog off the stove.

I don’t really have much more to say about my experience of bipolar disorder.  I’ve spewed.  I’ve wallowed.  I’ve raged.  I’ve picked up shiny objects along the path and given them a look-see.  I’ve made lots and lots of Plans.  I’ve fought hard and surrendered.  I’ve changed my tune as often as my mood.

i-am-largeThere’s no end-point, no resolution, no Ah-Ha Moment or Happily Ever After.  For me, now, there’s just the daily practice of being me and trying to accept whatever shows up out of the bipolar soup.  There’s still pain and confusion, but also moments of soft contentment.  I struggle every day with relationships, but so does everyone else on the planet.  Periods of suicidal thinking will rise and fall as will my ability to function in the outer world.  So be it.

Still.

New stuff keeps surfacing out of this tepid bouillabaisse.  Since my therapist and I started working with my PTSD symptoms, my internal weather seems different.  The barometric pressure of trauma feels different from that of rapid cycling.  Free-floating fear now follows a pattern.  Opening the windows to let in fresh air turned out to be much less horrific than I’d imagined.  And I have new tools.  Gotta love new tools.

vocabulary-ninjaAside from writing about my practice of mental illness, I’ve posted enough fan-fiction to satisfy my ego.  Yes, I am a writer.  Yes, I can craft a decent story.  I don’t need to prove anything anymore.  Like Popeye, I yam what I yam.

Still.

I will take these six years of blog posts and rewrite them into a book of essays that I’ll self-publish sometime this year. Writing is still important to me—not just communicating, but crafting a sentence, weaving a metaphor, developing a thought.  Is the challenge to go deeper?  Is there a story in acceptance as well as agony?  If I stopped blogging, would I search as hard for balance?  Do I need this blog to keep me on the Path?

woohooAnd then there’s the art.  Illustrating posts with my cards and collages still lights up my ego.  I can feel it light up—all bloat and gas—and wait for the comments to roll in.

Still.

Sometimes, a piece holds more therapy than ego.  It carries a different flavor, adds savory and smoke.  It blends with the words to create a richer meaning for me.  I’m not sure ego ever disappears, but when words and art blend in this way, my ego gets quieter.  And when the ego shuts up, all kinds of doors can open.  This magic happens in my art journal.  I’m not sure it translates here.

Almost every blogger I’ve read comes to this crossroad—continue or stop, take a break or refocus.  I need to hold these questions gently and keep showing up while they simmer.  Because no matter what…

I’m on an Adventure.

Traveling

sorrows-mother

I haven’t posted much lately because it’s been scary inside my head.  There’s a fine line between sharing my practice of bipolar disorder and giving voice to the blackest symptoms.  When self-loathing and unrelenting despair become the landscape of my mind, there’s no scenic overlook.  While I strive to be honest here, I also know the scenery will change as my brain rolls on down the road, and that perspective provides a much better photo op.

While I attended Lutheran Hospital’s out-patient program, I stopped taking medication for Binge Eating Disorder (BED).  We needed to see if it was causing my headaches and contributing to the irritability and rage.  Subsequently, all the BED symptoms poured back in—food mania and uncontrollable bingeing.  I gained 15 pounds and hurt all over.

BED creates a downward (outward?) spiral—more weight causes less activity which gives all that food more permission to stick around.  I was already morbidly obese, but was at peace with my body.  Without the Vyvanse, negativity and self-hatred stuffed my head like a Christmas turkey.  The spiral became a hopeless vortex.

Nothing in my bag of tricks helped.  Death fantasies dogged me, but I knew two things would always stop me from actually taking my life—my cats (who are getting old) and the book I haven’t written.  In a weird perversion of logic, I decided that I’d better get cracking on that book if I wanted it to be a party favor at my funeral.  At least I’d have a project to work on.

So, this past weekend, I stayed with my friend, Lily, in Minneapolis and met with another friend, Jinjer, to talk about her experience of self-publishing.

coming-back-to-myselfAnd a very bipolar-ly thing happened.  Being with these friends, who love me unconditionally, traveling out of the struggle of my everyday life and into a few days of watching Netflix in jammies and spicy tea in handcrafted mugs, jolted the positive neuropathways awake.  The hateful Muzak in my head stopped.  My friends’ tender care helped me remember myself.  All the bits and pieces that BED and depression tore off me, fluttered back like Monarchs to their winter home.  Art happened.

And a book will happen.

While I knew Jinjer self-published at least two books, I had no idea one of her many talents was designing books.  So instead of beginning a steep learning curve, I gawked at a path as smooth and clear as asphalt.  She will take my manuscript (when finished) with the accompanying artwork and midwife it through the process.  I started working on the second draft as soon as I got home (and also started back on Vyvanse).

This book is my legacy, not a parting gift.  It’s proof that I lived and survived bipolar disorder, BED, PTSD and whatever acronyms stick to me next.  Like this blog, it speaks to the speed of landscapes passing through a traveling mind.

I’m still on an Adventure.  And I’m making my own Atlas.

sorrows-mothercoming-back

 

The End of Gratitude

Gratitude U

At least in collage form. For a while. Frankly, it was exhausting to summon up so much gratitude when I was hospital-worthy.

Gratitude V

Negative thoughts yoke themselves to negative emotions. One can trigger the other, strengthening the connection, creating a wider, smoother highway for each subsequent episode.

img_1064

Forging new neural responses through mindfulness and self-compassion takes time and lots of practice.  It feels counter-intuitive at first.  For years, perhaps, we’ve berated ourselves for not being strong enough, disciplined enough, grateful enough.  These core beliefs feel so true, we don’t even question them.

img_1067

You, yourself, as much as anybody in the entire universe, deserve your love and affection–Buddha

Science now supports what that old bodhi tree-sitter knew–mental illness must be embraced with love and awareness from those who suffer from it.

img_1070

It feels impossible only because it’s a path waiting to be created.  But I’ve found over the years of making my own trail through this bramble that it gets easier to remember the way back to it.  And once I remember to treat myself gently and with exquisite care, I find I can breathe again.

img_1072

And then, I can be grateful for the air, and my lungs, and this day.

Disquietude

get-back-up-artistMy computer came home today, perkier, but still not firing on all cylinders.  The tech-docs did their best and will continue to monitor vitals.  At least I don’t have to create posts on my phone anymore.

Perhaps now my vague disquietude will ease up.  I feel like I’m constantly patting my mental pockets to make sure I have my keys.  What am I forgetting?  I start out the day with my gym bag and art tote, then forget my purse.  Once back in the car, I realize I’ve forgotten the letter I need to mail.  Then, my coffee.  Or like yesterday, I left my coat somewhere and still haven’t found it.

I’m discombobulated, constantly ticking important stuff off on my fingers.  Cats alive?  Gas in the car?  Shoes on?  I check my calendar, then look at it again because I can’t remember what was there.  I’m guessing my anxiety is a little spiky.

I’ve been getting about two hours of sleep at night for several months —even taking Xanax, which is usually all I need.  So, my med provider switched me to Clonazepam—same pharm family (anti-anxiety), but with a longer duration.  I still wake up three or four times a night, but go back to sleep, which I wasn’t able to do on Xanax.  And I’m not waking up furious.  That alone is a huge relief.  Any morning I can get out of bed not pissed off or in PTSD flashback-mode is already a success—no matter what else follows.

hen-in-charge1116Before Anthony, the tech-surgeon, made his house call this afternoon, I vacuumed and dusted a little—something I haven’t done since summer.  I told a friend, “You know it’s time to vacuum when the carpet is crunchy.”

Like my computer, I’m still not firing on all cylinders, but we’re both making progress.  Two addled brains are better than one, I guess.  It’s a good thing the cats are in charge.

Take-Aways

anton/compassion

…be attentive to what is arising within you, and place that above everything else… What is happening in your inner most self is worthy of your entire love; somehow you must find a way to work at it.

—Rainer Maria Rilke (from the cover of an IOP handout on PTSD)

•Mindfulness and Self-Compassion change the  physical structure and chemistry of the brain.  Now there is scientific proof.

•Books I’ve ordered on the studies and effects of neuro-plasticity that have been referenced in IOP:

  1. Seeking Safety: A Treatment Manual for PTSD and Substance Abuse by Lisa M. Najavits
  2. Buddha’s Brain: The Practical Neuroscience of Happiness, Love, and Wisdom by Richard Mendius and Rick Hanson
  3. Bouncing Back: Rewiring Your Brain for Maximum Resilience and Well-Being by Linda Graham
  4. Into the Magic Shop: A Neurosurgeon’s Quest to Discover the Mysteries of the Brain and the Secrets of the Heart by James Doty
  5. The Mindful Way Through Depression: Freeing Yourself from Chronic Unhappiness by Mark G. Williams, John D. Teasdale, Zindel Segal, John Kabat-Zinn and John Teasdale
  6. Self-Compassion: Stop Beating Yourself Up and Leave Insecurity Behind by Kristin Neff

I’ll be in the program one more week.

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