I Deserve to be Loved

My secrets come out in my art—songs I long to have sung to me.

I’m dying for the lack of it.

Lonely

After seeing Avengers: Endgame on Friday, I’ve been profoundly moved.  I know it’s fan-girly, maybe bipolar, definitely grief.  I don’t think I’m giving anything away by saying that.  We all knew there was a Phase One in the Marvel-verse that was coming to an end with this movie.  It is superbly executed.

Something’s come to an end with me, too—some fracture in the way fantasy has soothed me in the past.  Pretend Boyfriends don’t call to me the way they used to.  Barely a whisper anymore.  And so rare.

It’s left me feeling lonely and hollow.

This song came up on my iPod yesterday as I worked in my art journal, trying to feel some connection to the other people at the coffee shop.  I played it on a loop until I could cry, until I could let myself feel all I was feeling.  I think Cap would understand.

Ω

It’s not your eyes
It’s not what you say
It’s not your laughter that gives you away
You’re just lonely
You’ve been lonely, too long
All your actin’
Your thin disguise
All your perfectly delivered lies
They don’t fool me
You’ve been lonely, too long
Let me in the wall, you’ve built around
And we can light a match and burn it down
Let me hold your hand and dance ’round and ’round the flame
In front of us
Dust to
You’ve held your head up
You’ve fought the fight
You bear the scars
You’ve done your time
Listen to me
You’ve been lonely, too long
Let me in the wall, you’ve built around
And we can light a match and burn them down
And let me hold your hand and dance ’round and ’round the flames
In front of us
Dust to dust
Ω

 

Once Again, Thankful

I love my blog.  I never came here to do anything except tell my story—whatever that might mean.  I never expected to find deep connections.  I never expected to touch so many lives.  Or to be touched by so many.  The only conditions I placed on my posts were to tell the truth and to wait long enough to know what the truth might be in a given situation.

Keeping this space for almost eight years means it has also become my memory.  Electroshock not only eliminated 2006 and 2007, but continues to burn holes in the process that changes short-term into long-term memory.  I stopped fussing about that long ago.  Being forced to live in the Now is a pretty decent way to live.

As I think about making some sort of journal/tribute for Henry, though, I mourn all the stories I’ve forgotten, all the little details, the ways he, Emmett and I became a family.  So, when I sit down to write about him, I start with what I notice now.  This morning I wrote about how quiet the house is without him.  That thought led to another and another, stitching together fragments of memories into a surprising string of delight and appreciation.

And I come to my blog, where Henry’s stories remain clear and available.  I took more pictures of the cats so I could illustrate those stories.  How grateful I am to have this reliquary!  Who knew how smart I was in 2011 to fiddle around with WordPress?

As Emmett and I rearrange ourselves around and within the space that was Henry, I’ll keep coming here to share our truths.  Today, Emmett is soaking up the morning sun in the Alpha chair.  When I came home from yoga (noticing the silence instead of Henry’s irritated greeting), and saw Emmett basking, I took pictures.  This is an important moment for him, for us, for our life now.

The sun and the silence.  And the Adventure Continues.

(This song by the Wailin Jennys has always felt like Henry to me—his energy, his personality—so I share him with you in a slightly different way.)

Just Don’t Scare the Cats

I don’t know why I’m always surprised by how awful this illness can feel.  There are episodes that seem like the first time (though I don’t think this is what Bryan Adams had in mind).

Little annoyances pile up and become life-jettisoning disasters.  This morning, after fighting with my shower curtain and flooding the bathroom floor, I collapsed on the bed and bawled full-volume.  I didn’t try to stop, hoping the release would activate some mysterious brain juice.  But all it did was scare the cats.

While Emmett huddled in the corner, Henry leapt to the rescue, yowling and circling my body.  He’d pause to sniff my face, then circle again. Or pause and grumble at the window to make sure no predators attacked while I was in this weakened state.

My boys.  My old, grandpa cats.  Saving me from myself.  Again.

Eventually, I wound down and started pulling together a plan for how to get through the day.  And the boys went back to their naps.

Walk Me Through This One

 •

My mind is a swamp.  A swamp littered with broken glass.  I know how important it is to put on my big rubber boots.

I have to navigate Medicare’s blockade.  Again.  Still.  I need to work with a doctor who doesn’t believe me and seems outraged when I ask him to address my needs.  And this might all be my swamp, bubbling up and belching gas.  A hallucination?  Reality?  Somewhere in between?

It makes my gut ache, all this wading around and watching for gators.  The glass shards glitter in the foggy light, slicing across thin rubber.

I realize I take high offense at being disbelieved, as if I know nothing of my own body or the patterns of my Everglade mind.  It is a kind of erasure, wiping away my years of struggle and learning, all the experimentation, all the adventure.  It denies my intelligence.

So, I take a big lungful of the swamp gas and blow it out.  Offense is a state of mind.  An unhelpful state of mind.  My task today is to adjust my perspective.  I cannot be erased by another.  I know who I am.  I know what I know.  And I will play the Game.

Synchonistically, I started an online course today called Creative Mindfulness.  And I will meet with a new therapist who is versed in Cognitive and Dialectic Behavior therapies as well as Mindfulness.

“Calling All Angels.  Walk Me Through This One.”

Inspired Upon Waking

It was a small venue—an old church, maybe.  Judi Dench sat on an old piano bench against the right wall, looking worried and undecided.  We all sat quietly, but the people around me held thin plastic squares high in the air—no bigger than a matchbook with rounded corners, so I knew it was an Apple product.  Tiny recorders.

“Yes,” Dame Dench finally said in her raspy voice, “I will sing, but absolutely no recording.  Please.”

No one put down their tiny squares, and I felt anger tumble over my need.

“Put them down,” I said, trying for loud and reasonable, but ending up with shaky.  “It’s Judi’s voice, not yours.  It belongs to her.”

More hands lifted in the semi-darkness.

They’re spoiling it, I thought, desperate.  She’ll leave.

Her eyes found mine in the crowd.  “Oh, all right, then.”

She turned to the piano, away from her audience, but did not play it.  She started to sing a Loreena McKennett song acapella, her Shakespearian-raw voice scratching the notes.  She was not a singer, yet she sang.  At 83, she sang.  Recorders be damned.

Another Train


So, nobody said I was particularly wise.

In my desperation to tame the Binge Eating Disorder beast, I regularly cycle around to doing stupid things—things I know in my adipose-caked heart won’t work.  Like diets.  But when an authority figure (aka my new doc) blamed all my physical woes on obesity, and my trusted nurse practitioner suggested a ketogenic diet, I jumped like water in a skillet of hot bacon grease.

I learned two things:

  1. A ketogenic diet made my gut unhappy in violent ways.
  2. I will binge on anything, so changing the type of food doesn’t change the behavior one iota.

So, now I’m back to mindfulness and paying attention to my triggers.

All this food-stress didn’t help my bipolarness.  I’ve been roiling, inside and out.  My thinking is still in desperation mode, so I need to be careful not to jump on every thought-train that pulls into my station.  Another train will come.  And another.  Sooner or later, this anxiety and agitation will shift.  The urge to hop a train out of town will ease.  Eventually, I’ll be able to leave the station and go home.

But, I’ve got this ticket in my hand…

Sia

I’d not heard of this artist until I saw Wonder Woman yesterday.  A little Florence and the Machine, a little Halsey—I like it.

Mirrors

There’s nothing like being brainsick over a holiday weekend to remind me of my demographic status.  I’ve struggled for several days with vicious, distorted thoughts, but holidays add more stress with regular support services closed, carefully constructed routines disrupted, and human support unavailable as they enjoy time with family and friends.  Long weekends are difficult, and I’m not the only one who feels it.

So far this weekend, emergency vehicles have visited my ten-unit complex five times.  That means half of the residents have been in such a state of crisis that their only option seemed to be 911.  And the day’s only half over.

To try to calm my own agitation, I went to our common room this morning to do laundry, sit in the quiet, and maybe journal. I found one of the window latches broken.  In the bathroom, the toilet seat was broken in half with feces on the floor.  I cleaned that last bit as best as I could, weeping at the level of distress that person must have felt.  Afterward, I emailed the apartment manager with the details, knowing she wouldn’t read it until tomorrow because it’s a holiday.

I’m fully aware of how lucky I am to be “high functioning,” to have friends I can text most anytime, to have a sister who would come to my aid if I needed it.  I don’t interact much with my neighbors, because some of them can’t follow a conversation.  Others are quite shy and introverted or belligerent and aggressive.  I keep to myself.

But I understand all of it.  I am all of it—at times introverted or belligerent, unable to translate my thoughts into words, unable to concentrate on what someone might be saying to me.  I understand being in crisis and feeling like there are no options.

I live in an apartment complex of mirrors.  It makes me more human to look into them from time to time.

I Must Be Getting Better…

…because I have no more fucks to give.

Oddly, my bipolar and binge eating symptoms hibernated while I was sick with bronchitis, sinus and ear infections (Can my body not multi-task?  Is my brain too small to hold it all?), so the return of mixed-state depression/rage must mean the other stuff is on the way out.  Yaay (?)

While being physically sick is no fun, the vacation from mental shit-storms and out of control compulsion is heavenly.  It’s like being normal, only full of snot and really, really tired.

I’m still tired and semi-full of snot, but yesterday I rode sad anger back to bed and built a nest of portable projects around me to keep the yammering in my head at bay.

Henry and Emmett attended, but even they knew not to poke the bipolar bear who had no fucks left to give.

One of the hard things about coming back to my normal state of mental abnormality is that I’ve done so much cool art stuff these past two months.  When I could barely breathe, I read a bit in Susan Wooldridge’s Poemcrazy about collecting words, then made Word Cookies out of old art magazines.

I carry them in this little bag that fits nicely in my purse, and offer them like Fortune Cookies to whomever I’m with (which has mostly been people at the drug store, my therapist’s staff, and a few civilians willing to chance my germs).

I’ve been brave about drawing in my journal.

And I created a spread that fell together like a story.  Poor Tom Hiddleston, dumped by the harlot Taylor Swift, gave a heart-wrenching interview in February’s GQ that reminded me of Sting’s song Why Should I Cry For You?  A little research gave me details I’d missed just listening to the song, like “under the Dog Star sail,” which refers to Sirius, and “north, northwest, the Stones of Faroe,” which led me to the tiny cluster of Faroe Islands off the coast of Iceland.  I loved the metaphor of a broken-hearted sailor on the bleak, Arctic seas.  And I loved pulling together all the elements for the collage.

The wall quilt I started before I got sick is turning into a fabric collage—a place to try new skills like painting and stenciling on fabric.  Tearing apart my old art magazines for the Word Cookies, I found wonderful tips and examples.  When I gave a fuck, the possibilities thrilled me.

The materials to make three new art journals came out of my cupboard.  I finished two.  The third now languishes on my table, waiting for the fucks to come back.

The Buckaroo Banzai journal

My favorite quote from the movie by evil Emilio Lazardo.

Art by Andrea Matus DeMeng

I took a class with Andrea at ArtFest.

One week in therapy, Megan and I looked at commitment, not just making commitments to others, but also keeping promises to myself.  I realized that my longterm goal of writing a book to be published carried no joy for me anymore.  In fact, working on it was often painful.  Why was I doing this again?  So people at my funeral could get a party favor?  Morbid, bipolar-based reasoning.

I don’t have to prove myself a writer anymore, or leave something “of substance” behind.  I can spend my life pleasuring myself with weird art that practically falls out of me, instead of grunting over tortured prose.  So, I let that ancient goal go.  There are, my friend Sue tells me, only so many fucks a person can give.

Yesterday, in my Nest of Apathy and Rage, I emailed Megan, just to whine.  I knew, eventually, that the anger and depression would shift, but it was big and ugly yesterday.  Even if I had none, I wanted someone to give a fuck.

Have I mentioned that my therapist is awesome?  And funny?  She wrote back later:

I hope a fuck ton that you feel better soon. 

The Adventure Continues.

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