Daft Trek

Social Services, the Final Frontier.  These are the voyages of one unclassifiable nut-job.  Her ongoing mission: to explore convoluted government gobbledy-gook; to seek out new services that might actually help; to boldly leap over the cracks in the system where no one has leapt before.


After I finished the Intensive Psychiatric Rehabilitation program in late June, the search was on to find some kind of support that might fill the gap.  IPR wasn’t therapy, but working with Aly for two hours twice a week turned out to be the best therapy I’d ever had.  How can you not go deep and actually problem-solve with that much one-on-one time?  Most participants in IPR spend half their time in groups, but we had trouble finding peers for me (I’ve got so much insight, you know), so Aly and I just met by ourselves.

We both knew no social service could provide what Aly gave me, so we looked at the kinds of support I might find.  She and my therapist thought Lutheran Services of Iowa might be a fit.  I went through two-hour assessments with both my caseworker and LSI, was approved, and started seeing a caregiver in July.

I have a caregiver.  To say I have mixed feelings about that is like saying Emmett is a little nervous (though, here’s a barely-related photo of both guys sitting next to me as I write this with Em combed and smiling).


Anyhoo, it’s taken me all summer to get used to the idea of being a person who could benefit from a caregiver.  When I look at it in terms of what I need to stay out of the hospital, I get it.  But, like everything else concerning my mental health, I don’t fit in the usual categories, so we had to get creative.

Leanne, my caregiver, and I met for coffee once a week all summer at the new coffee house (Yaay! Marshalltown finally has a coffee house!)

Brew House

This was all part of my care plan—to get basic support.  It’s not therapy, but more than friends and family can provide.  For that hour, I get to talk without worrying about my social skills or being reciprocal in any way.  Most human interaction is two-sided.  Conversation is give and take.  And, while Leanne and I do converse, the point is we don’t have to.  For that hour, she’s there for me, and if I need all that time to process, I don’t have to feel guilty, or selfish, or worry about ruining our relationship.  Over the summer, we honed that process to where we’re both comfortable with it.  And it is a true and valuable tool.  Like my new soaking tub, I can relax with Leanne now and just let go.

The other part of my care plan is for Leanne to help me keep my apartment clean this winter.  Since I’m allergic to dust mites, I need a clean living space in order to avoid the asthma flares that lead to bad colds and, often, pneumonia.  And, since winter historically brings more severe depressive symptoms, cleaning (like anything requiring effort) flies out the window.

Halli, the LSI director, told me that their caregivers aren’t housekeepers.  They help clients set goals and work alongside them.  I’m expected to do the real work.  I like that concept.  I asked my sister to do that once, to come over and just help me figure out how to get my place cleaned.  I remembered what a huge help that was.  If I could get used to a stranger coming into my home, I thought that kind of support might help me avoid getting sick so much.

So, last Wednesday, Leanne came over and helped me replace the filters in my air vents.  It’s a big job, I even got the consultation from specialists of air duct cleaning in Kansas City, MO.  All the vents are in the ceiling.  I put filters in the ones I could reach by standing on a chair, but that was five years ago.  Last week, with a real step-stool, we replaced the black filters (ugh!) and got all the vents covered in the hour Leanne helped me.  I spent the rest of the day cleaning the grill on the intake vent (gross!) and laying filter material across that, too.

Intake Vent

Awesome!  Except I didn’t think to wear a mask.  Oops.  Now I’m fighting the very thing I tried to avoid—a bad head cold that will probably go south soon.  I should have known better.  I wore a red shirt that day, and we all know what happens to those guys.

11 Comments (+add yours?)

  1. Littlesundog
    Oct 05, 2015 @ 08:38:40

    I did not know about Redshirts. I am so glad you filled me in on this faux pas. Ha ha! I am glad you got through some deep house cleaning, and I hope that your head cold doesn’t linger and become something debilitating.


  2. Leslie
    Oct 05, 2015 @ 09:21:19

    So, I guess the true lesson here is to not wear a red shirt while cleaning! lolol

    I’m really interested in the concept of having a caregiver. If Leanne comes over to help you get some stuff done and you are feeling poorly (mentally) does she cajole you into getting up and getting cleaning, or does she go with the mood and just try to be there for you for an hour or so. It sounds like an amazing plan. To have someone that you trust, but not someone whose feelings are going to get hurt, come help you deal with your life sounds like a phenomenal idea. It’s one thing to go to therapy (I go twice a week) and try to find a way to get home and stay motivated. It’s another to have someone stop by and help motivate you while you are doing the project NOW.
    I wonder if there is something like that where I live. I’ll have to look. My family members are wonderful, but I won’t take direction from them. Even friendly nudging sends me running for my room feeling like everyone thinks I’m worthless. Something like this would solve that problem.


    • Sandy Sue
      Oct 05, 2015 @ 11:39:23

      If you qualify for Medicaid, you should be able to have a social services caseworker who can assess you for those kinds of services. It’s a lot of hoop-jumping and red tape, so wait until you’re able to deal with that.


      • Leslie
        Oct 05, 2015 @ 13:21:11

        I’m still waiting on my disability hearing. The attorney said that I would be eligible for Medicaid (Medicare?) after that. (As long as I’m approved for disability)

  3. jinjerstanton
    Oct 05, 2015 @ 13:04:50

    I highly recommend looking up the lion’s pose on Youtube (or in my book). I think it might well help. Emmet might want to be in another room. 🙂


  4. pegoleg
    Oct 06, 2015 @ 09:26:06

    That’s insightful, and must have been somewhat difficult to truly act on – that this care is NOT subject to the shoulds and musts of everyday social interaction, and that you can say what you truly need to say. I’m glad she seems to be a good fit.

    Also, thanks for the red-shirt cleaning tip. I’ll remember it, should I ever feel the need to clean.


  5. Alice
    Oct 08, 2015 @ 20:38:38

    I’m glad you’ve been able to find and access support that you need. Staying stable — especially NOT getting to a point of needing rehospitalization — is so important, and leads to a lot less wear and tear on the psyche!


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