Hysteria in Aisle Two

handmade greeting cards, collage artI woke up yesterday frantic, bolted out of bed and grabbed up my journal.  Something had to be done.  I needed a plan.

The day before I’d stepped on the scale at the Y.  Twenty pounds had crept back on.  I nearly fainted with horror and despair.  Not again, please.  Not again.

So, I sat at my table at 4:30 in the morning, trying to figure it out, trying to find one thread I could pull out of that frayed panic to gather my Will and my focus back together.  Because, I reasoned, if I can’t stop the binging and the food frenzies, then how can I stop myself from compulsively spending?  If I can’t control my spending, I’ll never be able to save for a car.  I’ll be dependent the rest of my life.  If I can’t stop the weight from coming back, I’ve lost and the illness wins.

So, okay, I thought, today—only water with lemon, fruits and vegetables.  I’ll make smoothies.  I’ll stay at the library all day if I have to.  I can do this for one day.  I can.

But, even as I wrote that and meant it, another part of me knew I could never pull it off.  How many times had I tried extreme measures—fasts, cleanses, sudden dietary shocks meant to galvanize the metabolism?  That kind of clamping down on the ravenous feeding only made it worse.  Every time.  I knew, even as I promised myself one day of food sanity, that I was poking a very large animal with a pointy stick.

I white-knuckled it until noon, then found myself at the microwave, making a plate of nachos.

It was a relief, really, to acknowledge my true nature.

Compulsive eating is part of my illness.  So are compulsive spending and sex.  And because they are compulsions, there’s no rational way to get rid of them. Believe me I’ve tried.  My therapist and I have looked at these behaviors from every angle.  The only way I’ve found to work with them is to acknowledge them and give them space.  To hold them with an open hand instead of a closed fist.  Which seems counter intuitive when they are raging.  I want the gobbling to stop, not watch the freak show as it happens.  But, weirdly, watching does help.  It tempers the ferocity and lessens the destruction.

By trying to save money, I’ve put my self in a pressure cooker.  Being poor has always triggered me, so I knew choosing to be even poorer might be dangerous.  But, I also thought that having a goal, something to work toward, might make that stress easier to bear.  Could I temper the panic and the compulsion to spend money?

The answer, it seems, is yes.  But the anxiety and compulsivity squirted sideways in food frenzies.  They will not be denied.

I’m not giving up, though.  I just passed through a couple of ragged days, and it’s hard to watch when the depression, anxiety and mania color the view.  I’m clearer today, and calmer.  The radio in my head has dialed away from the Self-Hatred channel and is back on Easy Listening.  Today, I’m okay about gaining back the weight.  It’s a temporary adjustment to all the stress.  And if it’s not temporary, then, that will have to be okay, too.  I’m going to let it be.  Instead, I’ll turn my attention to the stress itself—the feelings of deprivation and powerlessness, the fear and uncertainty.

I’ll become an Observer, like September on Fringe, changing the outcome just by watching the experiment, noting the effects with a gentle, non-judgmental attitude.  Like September, I can’t be completely objective.  We both care about the outcome of the experiment too much.  And I may keep binging, but at least I won’t be eating raw roast beef sandwiches with seven jalapeños and tabasco sauce.  I still have a little dignity.

Fringe, September

Getting Better

handmade greeting card, collage art

I stood at my kitchen window yesterday, watching the morning come.  Prickly, my brain hot and sore, vague urges and angers surfaced in bubbles to pop, causing an instant of relief and splatter like a crime scene.  I felt the craziness in me like a wild animal, pluck-pluck-plucking at my soft tissue with one, long claw.

I watched a car go by on the street.  My mind mused:

I thought I’d be better by now.

And a Pandora’s Box opened.  Beliefs buried underground rose.  I expected my symptoms to lessen once I got off medications.  I expected my compulsions to ease as I worked on mindfulness.  I believed in a life where I’d be better.  I planned for it.  But, my symptoms are the same.  My compulsions are the same.  Mindfulness and being medication-free only help me See.  I’m never getting better.

I’m never getting better.

After a moment of self-pity, I looked back out the window.  Gray now.  The tree, the sidewalk, the patches of snow.  Another car went by.

Ah, the next thought settled on me.  That’s what all this has been about.

Revelations come in waves, for me.  They wash up over me, I get wet, then they recede.  I dry off and forget about them.  Except they leave sand in my shoes.  The next wave comes.  This one is stronger, knocks me off my feet.  But, it too, recedes, and I dry off again.  Each wave pushes me a little further up the surf line until, finally, I’ve altered my path enough to stay out of the water’s way.

The waves are coming fast now.

More and more, I’m being called to live Here and Now, to inhabit the person I am Now.  Not planning a life for someone who doesn’t exist.  It means respecting the fact that people exhaust and trigger me, accepting that food comforts and fantasy delights me.  It means embracing the changeable spectrum of my capacity, knowing that one day I can create a ritual full of symbolism and spirit for a group of 25 and the next day can only take a shower before going back to bed.  It means contemplating solitude and finding peace there.  It means respecting myself Now—the limits, the talents, the inconsistencies.  It means being willing to listen to who I am Now—what I need, what I want, what fills me up.

I don’t really know who I am Now.  I know who I was.  I know who I should be.  I know who other people expect me to be.  But, I’m willing to stand at my kitchen window until I find out.  Or until another wave nudges me in the right direction.

Christmas Unplugged

handmade greeting cards, collage art,Phew!  Well, that’s over.

Unplugging from Christmas felt a little like traveling through a foreign country.  After 55 years of doing Christmas, undoing it was just weird.  I was able to see how much anxiety and stress the holiday generated in me from the time I was tiny (sleepless and hysterical, watching for a magical man with presents to land on my roof) through my years working retail and still making all the family gatherings, to buying presents I couldn’t afford and eating food that made me sick, to the sensory and emotional blitzkrieg that ultimately triggers a fierce bipolar storm.

Thanksgiving was a trial run, choosing not to attend the family dinner.  I had to navigate some pretty big potholes of guilt and shame, feelings of being mean, selfish, anti-social, unloving, ungrateful, etc.  It was about as difficult not to go to Thanksgiving dinner as it was to go.  But, I knew I was carving a new path, and that it would get easier.

It did.  As a whole, my family was supportive.  They missed me at the celebrations, but didn’t pile on any additional guilt (I still had some of my own to manage).  My brother and I are starting a new tradition of meeting for breakfast the morning he starts back for home (he lives nine hours north).  This is perfect.  I can still enjoy him without getting overwhelmed.  My sister took me to a darling little coffee shop last week where we could do the same.  Now, I need to figure out some new tradition to do with my mom.  Hmmm…

Jimmy Stewart, It's a Wonderful LifeIt helped that I was still enjoying fair mental weather this week.  So, cooking a pot of delicious, vegan soup yesterday was a joy instead of a stressor.  Listening to my holiday music and snipping new captions for cards felt relaxing and calming.  And then watching “It’s a Wonderful Life” and getting weepy over the sweet Frank-Capra-isms was fun and kept me connected to the holiday.  I still ate too much yesterday, but all in all, it was a success.

And as a side note, my therapist gave me a tool I’d like to share with all my neuro-diverse friends.  It’s called The 14 Days of Christmas and is a way to navigate the stress the week before and the week after the holiday.  Here’s how it works:

The following activities are written on little slips of paper and put in a jar.  On each of the fourteen days, a slip is drawn and the activity carried out.  This helps in a number of ways:  each day has a small, doable goal; each day holds something to look forward to; and each day provides a small self-soothing or pleasurable activity.  All these benefits could mean the difference between losing one’s mind and keeping it.  Of course, there are times when no tool can keep the episodes from happening, but I like to have as many guns in my arsenal as possible.

Here’s the list.  Of course, everyone will have others to add that will make the list more personal.  I’m also going to fancy-up a jar and pack this with my Christmas decorations for next year.  That way I’ll have it ready to go.

The 14 Days of Christmas Activities

  1. Make an Alphabet Gratitude List (A is for Aunt Tootsie, B is for Biker-Chic boots, etc.)
  2. Make a list of ten things you like about yourself or skills you have when you are feeling good, then keep it to read when the bad times come.
  3. Do at least one activity that appeals to each of the senses (visit a flower shop, light a scented candle, etc.)
  4. Make a collage with pictures/words cut out of old magazines.  Let it be about what soothes you.
  5. Write down a New Year’s Goal—something you have control over and is reasonable.
  6. Go to a cafe or coffee shop.
  7. Journal.
  8. Turn on loud, fast music and dance.
  9. Read your favorite book, magazine, paper or poem.
  10. Read a trashy, celebrity magazine.
  11. Go for a drive.
  12. Write a letter to someone you haven’t heard from in a while.
  13. Watch an inspirational or funny movie.
  14. Get a haircut or pedicure.
  15. Play a video game or card game.
  16. Make a scrapbook.
  17. Make a list of people you admire (real or fictional) and why.
  18. Blog
  19. Try cooking a new recipe.
  20. Get a massage or go to a spa.
  21. Pray or meditate.
  22. Go to the library or a bookstore.
  23. Do something with your hands (knit, crochet, build models, make art, etc.).
  24. Have sex (alone or with someone you care about).
  25. Do your favorite exercise.
  26. Talk to a friend on the phone.
  27. Go to a museum or art gallery.
  28. Find something funny to do (read the Sunday comics, visit “I Can Haz Cheeseburger” on the net, etc.)
  29. Take a nap.
  30. Write a Bucket List.
  31. Chat online.
  32. Invite a friend to your home.
  33. Sing or play a musical instrument.
  34. Make a simple meal and invite someone to join you.
  35. Watch TV.
  36. Go for a walk and take a picture of whatever catches your eye.
  37. Have a little chocolate.
  38. Go outside and watch the clouds or the stars.
  39. Visit your favorite Web sites.
  40. Go to the movies.
  41. Learn something new (a new word, new skill, idea, information about a friend, anything) and write about it.
  42. Give a gift (bought, made, an experience, time together, etc.).
  43. Join an Internet dating service.
  44. Shop (virtual or real).
  45. Go visit a friend.
  46. Listen to gentle music.
  47. Play a game with someone else.
  48. Sell the stuff you don’t want on eBay or half.com.
  49. Draw or paint a picture.
  50. Add to this list.

Debt and Agitation

handmade cards, collage artI lost my mind for a little while this morning.

I’ve been struggling to hold my compulsive behaviors at bay, which is like telling the ocean to be still.  When the bipolar tide comes in, there’s no arguing with it.  Silly wall of water!  You just go back out to sea where you belong!  Sure, I could scold all day long.  Trouble is, I’d still drown.

When I’m severely agitated, I bolt.  I can’t make myself stay in my apartment or even in town.  I have to get in my truck and drive.  Usually to a friendly coffee shop in Ames or Des Moines where I can sip and write in my journal.  This soothes me.  This allows the anxiety and hysteria to ooze out until I can once again function like a human being.

I used to be able to moderate my rabbitty behavior by going to a coffee shop here in town.  But, Haven closed, and all the other cafés or bakeries or restaurants have too many strikes against them—too expensive, too loud, too dark, bad food, bad coffee, bad service, and the worst—uncomfortable chairs.  I have no middle ground anymore, no place where I can get away from my apartment without driving at least 45 minutes.

This is not an ideal situation for someone with no money.  I have to charge gasoline to my credit card, but can’t pay the balance.  So it grows.  And if I try to pay more on the balance each month, I have no cash and dip into the tiny cushion of my checking account.  So that’s shrinking, too.  As I sink deeper in debt, the stress of trying to physically rein in my symptoms and the squeeze of lack triggers more agitation, depression and manic flights of escape.  This morning I could not see a way out of this loop.  And the undertow of hopelessness pulled me under.

I talked to my mental health clinic about payee services in my area.  Could I find someone to help me manage my money?  But the thought of turning over my credit card or trying to “budget” my flights out of town made me sob out loud.  I thought about what else I could eliminate from my expenses.  I thought about asking my mom for money.  Everything seemed penny-pinching and ineffective.  The only real solution is to be mentally stable.  Silly old mental illness!  Just go back to whatever genetic pool you came from and let me get on with my life!

I’m too poor to be bipolar, that’s all there is to it.

Hysteria is never helpful.  I recognized this as I sobbed into my napkin and the other patrons at Panera tried not to stare.  Yes, my compulsive behaviors are active and overwhelming at present.  Yes, I am in debt.  But, I have people who love me and won’t let me end up sleeping in my truck.  This season will pass.

I don’t have a solution.  My view is too narrow and constricted right now.  But, that actually seems okay.  There are just some things that can’t be fixed.  Like bipolar disorder itself, maybe this is another partner I have to write onto my dance card.  I don’t know.  Not knowing is terrifying, but I can relieve myself of the burden to fix this situation for now.  That helps.

It’s like floating.  When the ocean seizes a person, they can fight and exhaust themselves, or they can float and save their strength.  For now, I’ll float and dream of life rafts.

Scooping the Loop in Bipolar Town

hand-made cards, collage art

Life is a series of natural and spontaneous changes. Don’t resist them; that only creates sorrow. Let reality be reality. Let things flow naturally forward in whatever way they like. —Lao Tzu

= = =

Change is hard for me.  I guess it’s hard for most people.  We get comfortable in our routines, settle in and snooze.  Life rolls along in a predictable way that’s soothing and reliable.

Change requires attention, energy, planning, and action.  It shakes us up and makes us re-evaluate everything we’ve taken for granted.  It knocks us out of that fuzzy comfort zone.  Sometimes it’s painful—letting go of ideas, people, places, things we hold dear.  Sometimes it rocks us to the core.

Part of my bipolarness is the need for routine—a generally consistent schedule to my day or week.  My routine comforts me.  It soothes the anxiety and agitation that are constant companions.  It gives me a way to move through the day when that seems impossible.

Also, my routine helps me maintain my priorities and meet my goals.  When the mood swings start looping one after another, it’s hard to move forward.  Routine is like a light over a familiar off-ramp that I can’t see in the dark.  Instead of driving around and around on the Rapid Cycling clover leaf—not able to focus, not able to make a choice about what to do—I can maneuver my car to that off ramp with my routine’s help.  I can keep moving forward, however slowly.

Big changes to my routine can trigger a blow-up of my symptoms.  And, since nothing stays the same except change, I’m discovering I need a strategy to manage those times.

Last week I had to quit my beloved deep water aerobics class.  The routine had changed over the summer from mostly cardio and core work to more arm exercises.  Too much of that makes my bum shoulder worse, so I tried to adjust my workout, ask for help, do my own thing.  But I wasn’t getting the workout my brain needs, so today I went back to the shallow water classes.

I’ve made good friends in the deep water class.  We created a tight community that supported each other.  But I know how important a hard workout is to my brain chemistry and to my over all health.  The decision was excruciating.  Not just because of what I had to give up in the class, but because it mucked up my routine.

Add to that my homelessness in terms of a coffee shop/writing aerie, my conversion to a vegan diet, and developing several new friendships and my routine is pretty much shot to hell.  I know in time I’ll pull together a new structure, but right now I’m free-falling.  And the anxiety that produces keeps me from rational thought.

All I can think of to do today is seek comfort—not the bipolar versions of comfort which are all obsessive-compulsive (though those are really calling to me), but something more useful, healthy and safe.  And if I can’t do that, then maybe I can aim for the least amount of harm in my compulsive behavior.  I’m not sure I can even do that.

I have to hold Lao Tzu’s words as a mantra today.  Let reality be reality.  Let this illness be what it is.  Flow with the changes without resistance.  Breathe.  Eventually, I’ll start to slow down.  Eventually, a new off-ramp will show up with a light bright enough to steer by.  Hold that wheel lightly.  Observe.  Embrace the new road coming—a new life is on the other side.

Failure, Seeds & Tidal Waves

collage art, hand-made greeting cardsI woke up this morning contemplating failure.

I knew last week would be rough.  When the Y closes for cleaning each summer, my whole schedule gets disrupted, but I planned around it the best I could.  However, I couldn’t foresee the bolus of anger that ignited my stress like tinder.  I didn’t anticipate the sudden plunge into a mixed state or the overwhelming return of my compulsions.  And I certainly wasn’t prepared to gain back six pounds.  This morning Failure glared like a jittery neon sign in my head.

But, if living with bipolar disorder has taught me anything, it’s that life is rarely that simple or black and white.  I needed to look at my week again, and again, and again, if necessary, to see the whole picture.

In my reading about anger this week, Buddhist Master Thich Nhat Hanh wrote about the seeds of anger that are in all of us.  Some have more seeds than others, or their seeds are strongly rooted.  I see that anger and resentment are deeply rooted in me. I keep old hurts precious.  I rail against Life and The Illness.  At times, I practice mindfulness and breathe into these seeds until they become transparent.  But, they remain.  Bipolar disorder, in me, shares a deep affinity with anger.  So, when my illness manifests, my seeds of anger sprout and grow strong.  It is part of the illness, and part of my practice.  Neither success nor failure, but an ebb and flow.

After my attempted suicide, my teacher said to me, “The illness got away from you.”  It does that sometimes, even after careful practice and planning.  I think of myself on a beach with my little buckets and sand shovels, diligently digging trenches and building sand castles.  Sooner or later, a big wave crashes in.  It blasts the castles and erases the trenches I’ve worked so hard to make.

Storms are part of the deal when you live on the edge of the sea.  It’s important to clean up the damage, but just as important to take inventory of what survived.  While my rage was huge and consuming this week, I didn’t aim it at anyone.  And I may have eaten non-stop to deaden the pain, but I still ate nearly-vegan.  I still have my buckets and shovels.

Tidal WaveThis life is so tenuous.  I make plans and set goals to try to keep the sand from constantly shifting under my feet.  Plans and goals are sticks I jab in the sand to find solid ground.  When the storm comes and washes the sticks away, I wail over my lost place-holders.  I forget that this is a Game, and harder yet, I forget how to play it.

The game is to Find the Sticks—those unique and beautiful tools we create to manage the illness—then Plant them.  We notice everything—the resistance of the wet sand, the strength in our arms, the sun on our necks, the pleasant rhythm of the Work.  We stand back to see the pattern and progression of our creation.  And when the Storm hits, we run for shelter, come back when the waters recede, and start again.

There is no failure in this game.  No winners or losers.  There is just the slow, steady Work and the inevitability of the Sea.

The Plan

collage art, greeting cardsOur YWCA is closed this week for its annual scrub and tune-up.  This year they’re refinishing all the pools, so we won’t be back in the water until August 20.  Since I get a little squirrelly on weekends when I don’t have my water aerobics class, a whole week without water or my other exercise options carries the potential for what my shrink calls “destabilization.”  After stumbling though this for a few years, I finally figured out that I need to put an alternate exercise plan in place in order to come out the other side without going completely yampy.  Like the Russians in Hunt for Red October, I always need a plan.

ω ω ω

This year my friend, Penny, generously offered me the use of her condo’s pool.  I’m also hitting Tom and Cheryl’s stationary bike in the evenings, setting up “walking dates” with other friends, and doing solo walks as long as my feet hold out.  I’m much more comfortable in the water than on land—my feet and joints get too sore pounding the pavement, and I have a congenital twist in one leg that generates monster blisters no matter what kind of shoes I wear.  But, as long as I can give myself a few days between walks, I’m good.

So much in my life has shifted since last summer’s break from the Y.  This year I’m deeply committed to getting the exercise my brain and body have grown used to and need along with continuing my exploration of the vegan way of life.  Another year of living medication-free and developing strategies for managing my bipolar disorder roots me in my Bipolar Bad-Ass way of life.  As a reminder this week, I added another mantra to my Inspiration Door.  The illness rises and falls, but my determination to live well remains constant.

Hunt for Red October, Sean ConneryI think even Sean Connery would approve.

The Path Always Followed

I have a confession.  It’s not easy for me to admit this.  But, it’s time to face facts.

Bipolar Disorder has turned me into a Coot.

I never thought it would happen.  I expected to be easy-going and spontaneous to the end of my days.  Fun-loving.  Ready for adventure.  Alas, genetics had other plans.

RAGBRAI, Marshalltown

Two days of disruption in my normal routine have left me cranky.  On Wednesday, our town welcomed thousands of bicyclists in The Register’s Annual Great Bicycle Ride Across Iowa (RAGBRAI).  For forty years, bikers from all over the country have come to Iowa during the last full week in July to ride from one side of the state to the other.  Approximately 460 miles in six days.  The host towns along the route offer food, entertainment, camp sites or shelter.  It’s a big deal.  A week-long party of endurance.

RAGBRAI, Marshalltown, IowaMarshalltown has been in an uproar all summer preparing.  And as soon as the big day dawned, I got the heck out of Dodge.  I had no interest in watching the sweaty masses peddle past my apartment all day long in 105 degree heat.  I didn’t want to get stuck behind them in my truck, or try to find a parking space at the Y between their support RVs and campers, or elbow my way through the throngs in my coffee shop.  I grumped my way over to Ames where civilized people sat in air conditioning instead of lying prostrate on the pavement.

K9 Inspection, BedbugsThen, yesterday, our apartment complex had its quarterly bedbug inspection by the K9 unit.  This time, the manager gave us proper notice, so I had a day to clean, then properly pack up my cats and all their paraphernalia.  We spent the day at my mom’s house.  The boys explored vast, basement hide-holes while I did laundry.  We also napped.  Because, that’s what coots do.

Agitation, Bipolar Disorder, RoutineI’m well aware that my cootishness is a direct result of routine disruption, and that burns my *ss even more.  I don’t want to be ruled by sameness, or thrown into an episode by an unscheduled activity.  I don’t want to be that fragile or that flaky.  I want to go with the flow and embrace whatever comes along (imagine a hippie-girl running through a meadow here—daisies in her hair, mellow without pharmaceuticals).

Well, too bad.  At least I had warning about both events.  That kept the fragile breakage to a minimum.  To be honest, fragile is not how I’d describe myself today.  Belligerent would be more accurate—as in a Clint Eastwood Make my Day sort of way.  So, don’t cross me, or I’ll beat you with a bicycle pump and flick bedbugs at your head.

Holiday Survival Tactics

I don’t like holidays.

I would rather scratch them all from my calendar.  I understand that the weary working need and savor this break, but they only make me sick.  The YMCA closes, my coffee shops close, the folks I interact with on a daily basis trot off to be with their families or throw parties—all of which blasts apart my routine.  Without my routine, I am a Bipolar Time Bomb with a very short fuse.

Since I was already in a heightened state of stress going into the holiday, I knew I needed some serious backup planning to keep from wigging out completely.  I planned to walk the neighborhood to make up for my missed aquatics classes.  Yesterday’s temperature was supposed to top out over 100 degrees, so I took my walk at 4:00 AM.  I was awake anyway with a yammering cross-fire of spiky thoughts (courtesy of the Bipolar Agitation Fairy), so why not use the time, right?

I decided to allow myself some TV, but the only thing on was Magic City, a Starz series about hotels and the mob in 1959—sort of like Mad Men with dead bodies.  I got hooked immediately and had to watch six episodes in a row until I couldn’t take any more depravity or naked women.  More yammering, only now it’s images of icky, greasy mobsters doing icky things.  Ick.

The urge to bolt seized me, and all I could think of was to go to a movie.  That I’d already seen.  Which was fine.  Air conditioning and popcorn with a little distraction from the yammerers.  But after the movie I was right back where I started.  I made birthday cards for a while, cooked some supper, worked three crossword puzzles.  I tried to soothe my traumatized cats when the fireworks started up, but they would have none of that.  They planted themselves under my bed and stayed there.

When I finally crawled into bed myself, all I sent up a little prayer of thanks.  I made it through another holiday.  Sort of.

Becoming

What a wacky week.

On one hand, the rapid cycling and slow-motion despair dragged me into a “What’s the Use?” thought loop that quickly spiraled into suicidal ideation.  On the other hand, I was this month’s Biggest Loser at TOPS with a 9.6 pound weight loss.  The fact that I made it out the other side of this bipolar frenzy makes me know, deep in my soul, that I can make it through anything.  I told a friend, “If I didn’t kill myself this week, I never will.”

And that feels absolutely true.  Not delusional.  Not wishful thinking.

I could feel the Bad-Ass coming back yesterday, but I had to keep searching for her.  My grip would slip, but if I concentrated, I could find that sense of ferocity, that drive to survive and beat back the darkness.  That sure-footedness is a little stronger today.

I know I’m not done with the stress of challenging my compulsive eating and changing the fabric of my life.  I know the stress will trigger my illness again.  And again.  But somehow this battle is bringing me back to myself.  I’m finding a partner in me, someone I can finally count on to guard my back instead of sabotaging my efforts.  A new level of self-trust is forming, a new confidence.  I like this person I’m becoming.

Today I have to agree with Nietzsche—That which does not kill us makes us stronger.

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