Zzzzz…

handmade greeting card, collage artMmmfrph.  This is my first morning after my first night on a sleeping pill in over three years.  Erg.  Still didn’t sleep through the night, but part of my brain seems to be unaware of this fact.

Speaking of drugs, my conversation with the hospital shrink was quite satisfactory.  She was the one three years ago who told me pharmacology had nothing more to offer me, which set me on my Bipolar Bad-Ass course.  I thanked her for that, which caused some wide-eyed blinking and mention of new meds I might try.  Thanks, but no.  But after two more nights of only three hours of sleep and no opportunity for a nap during the day, I agreed that a sleeping aid was in order.

Changes is one’s sleep pattern is an early warning sign of mental distress, but I wasn’t paying attention.  It’s too easy for me to just take a nap during the day if I’m tired.  I’d been doing this for so long, I forgot it wasn’t healthy.  So now I have to retrain my body and brain to the required eight consecutive hours.  It will take a little time and tolerance for the morning hangover.

Fatigue makes me irritable and intolerant.  Concentration splinters and I lose my sense of humor.  Sitting in group all day with other people jangles all those weary nerves.  I try to watch as my irritability bubbles up, take a deep breath, and wait for the froth to settle before speaking.  So far, so good.

It helps to be working with interesting material.  Tuesday we spent the day on self-esteem.  Yesterday we started on boundaries and anger management.  More on those topics today.

Here’s part of a video we watched from Jack Canfield, the author of the Chicken Soup for the Soul series. I managed to stay awake for this one.

Getting Better

handmade greeting card, collage art

I stood at my kitchen window yesterday, watching the morning come.  Prickly, my brain hot and sore, vague urges and angers surfaced in bubbles to pop, causing an instant of relief and splatter like a crime scene.  I felt the craziness in me like a wild animal, pluck-pluck-plucking at my soft tissue with one, long claw.

I watched a car go by on the street.  My mind mused:

I thought I’d be better by now.

And a Pandora’s Box opened.  Beliefs buried underground rose.  I expected my symptoms to lessen once I got off medications.  I expected my compulsions to ease as I worked on mindfulness.  I believed in a life where I’d be better.  I planned for it.  But, my symptoms are the same.  My compulsions are the same.  Mindfulness and being medication-free only help me See.  I’m never getting better.

I’m never getting better.

After a moment of self-pity, I looked back out the window.  Gray now.  The tree, the sidewalk, the patches of snow.  Another car went by.

Ah, the next thought settled on me.  That’s what all this has been about.

Revelations come in waves, for me.  They wash up over me, I get wet, then they recede.  I dry off and forget about them.  Except they leave sand in my shoes.  The next wave comes.  This one is stronger, knocks me off my feet.  But, it too, recedes, and I dry off again.  Each wave pushes me a little further up the surf line until, finally, I’ve altered my path enough to stay out of the water’s way.

The waves are coming fast now.

More and more, I’m being called to live Here and Now, to inhabit the person I am Now.  Not planning a life for someone who doesn’t exist.  It means respecting the fact that people exhaust and trigger me, accepting that food comforts and fantasy delights me.  It means embracing the changeable spectrum of my capacity, knowing that one day I can create a ritual full of symbolism and spirit for a group of 25 and the next day can only take a shower before going back to bed.  It means contemplating solitude and finding peace there.  It means respecting myself Now—the limits, the talents, the inconsistencies.  It means being willing to listen to who I am Now—what I need, what I want, what fills me up.

I don’t really know who I am Now.  I know who I was.  I know who I should be.  I know who other people expect me to be.  But, I’m willing to stand at my kitchen window until I find out.  Or until another wave nudges me in the right direction.

Is There Now Evidence Withdrawal From Antipsychotics Can Induce Psychosis?

Reblogged from Manic Muses:

For those who aren't regular readers of my blog, I have been struggling to quit Abilify – a powerful antipsychotic medication - without success.  This has been a frightening, long and drawn out process for me, since the withdrawal symptoms I've experienced every time I have tried to quit this drug inevitably included a mild psychosis.  What is even more disconcerting is I never had any symptoms of psychosis until I started taking Abilify.

Read more… 1,324 more words

This is vital information for anyone on psychotropic medication.

Remembering in Dark Water

One thing I’ve learned about my particular flavor of bipolar disorder is to never take myself seriously—especially during an episode.  The musings, scrambling for Meaning, revelations, decisions and planning that go on while I’m the throes of my illness are, at best, untrustworthy, and, at worst, dangerous.  Like the other, darker thoughts that crowd in, these milder delusions are just flotsam—the foam churned up by my brain’s tidal changes.

So, I’m a little reluctant to pose anything my brain has spit out over the past few days.  These ideas always seem rational.  They feel reasonable, even helpful, but I know my judgment is faulty.  I won’t be able to see how much until the episode passes.

With that very large caveat, here’s the thought taking up space in my head.

I need to keep journaling.

During this episode, I’ve tried to do a little research for my next writing project.  Mostly, I’ve been reading my journals to get a sense of my illness before it was diagnosed.  Aside from the shock of seeing how ill I was, I was struck by my retroactive memory loss.  The months or years when I didn’t journal are gaps in my memory.  Sometimes I can conjure a vague image or touch a ghost of an emotion, but mostly the gaps are flat blanks.  That, I’m used to.  I’ve requested my medical and therapy records to try to piece together those times.  I’ll dig out photo albums and talk to people who knew me then.  I’ll be able to place something in those white spaces.

But even more disturbing to me is that I can’t remember the things I did journal about as recently as two years ago.  Some of the images are a little clearer, some of the emotion easier to touch, but the details of my life continue to slide into oblivion.  Once my days and nights leave the Now, they march like little lemmings off the cliff of Recall.

It’s hard for me right now to keep from making up stories about that, to refrain from following my Dark Brain’s search for the reason why, to not obsess about the possibilities thrown into depression’s sea-foam—electroconvulsive therapy, drugs, genetics . . .  

In truth, it doesn’t matter why my memory is so damaged.  What matters is how I deal with it now.  And aside from keeping my brain as healthy as possible, it seems keeping a record might be helpful.  If I ever thought journaling was self-indulgent, I don’t anymore.  It may be the only way to hang onto my days once they’ve passed.

While this current episode washes through, I’ll try to hold this idea lightly, try not to be frightened by what I’ve found, try to just breathe and wait.  If it still seems important on the other side, then. . . well . . . we’ll see.

The Best Version of Me

Maybe I’m manic.

That’s always the first thing that comes to mind when this much joy bubbles up—which reminds me to hold the glee as lightly as the depression, without grasping or identifying with either.  So, with caution in the back of my mind, I can enjoy this delight.

The source, of course, is the story.  I’ve been working on a rewrite of my novel, Callinda, for a year now, and as I get closer to the climax, it has picked me up and carried me.  Every day, I’m surprised by what the characters do, the turns in plot, the places they are required to go.  Even though I have the whole story outlined with detailed notes, they break through those fences and find new ways to tell their tale.  I’m awestruck.

When I am writing, I am the best version of me.  The Creative Energy moves through me like water, raising me up and floating me out to where the ideas drift across my skin like lotus blossoms.  I can feel my mind open like a bud in the way it unfurls and s-t-r-e-t-c-h-e-s toward the sun.  There’s a peace that settles in and a knowing—I am doing what I was made to do.

Even during the worst bipolar episode, part of me can still write.  Callinda taught me that when I wrote the first draft during the darkest of my dark days.  I was sick with relief that the ECT, the drugs, and the trauma didn’t take that from me, too.  I was changed in fundamental ways, but I was still ME.  I was still a writer.

And, wonder of wonders, I became a better writer.  No more writer’s block, no more fear of failure or of not being a good enough story-teller.  All those obstacles dropped away after I survived my suicide attempt.  I’m alive, so I write.  It became as simple as that.

There are still days when I futz about my contribution to society, my purpose, my reason for being.  Those are the days when the depression comes and yanks my thoughts off true.  I know why I’m here.  I know what my work is.  I’m doing it.

And it gives me joy.

Count the Blessings

I’ve been down with an intestinal flu the last couple of days.  Nothing to do but watch movies, drink ginger ale and ponder the year that’s about to end.  But pondering can be a dangerous exercise, especially when I’m sick and in the middle of an episode.  I’ve learned it’s never a good idea to give too much attention to the thoughts that swirl up then.  Too much darkness, too much regret, too much grief.  So instead, I’ll focus on a few of the blessings 2011 brought me.

A place to sell my art cards.  My last visit at The Perfect Setting was disappointing compared to all the other times I’ve sold my cards there.  Pam, the owner, placed another employee in charge of the greeting cards.  This person pulled a couple of mine as “inappropriate”.  It seems she and I don’t share the same sense of humor.  So, Pam bought only half of the bunch I brought in this time instead of all of them.

Even though I know better, I took it very personally.  I know every shop has to make careful selection and cater to the clientele, but it surprised me since Pam always seemed to love everything I brought in.  Every artist has to tailor their work to fit the market—I know and understand this.  It just caught me on a very bad day, and I haven’t been able to sit at my studio table since.

This isn’t sounding much like gratitude.  But I am extremely grateful to Pam for taking a chance with my work.  She hung my weird collages even though no one in Marshalltown will ever buy them.  She bought all my cards, even when her other employees raised eyebrows.  She let me be the square peg in the town’s round hole—no one else here has ever done that for me.  Yes, I’m grateful.  And eventually, I’ll start making more of the cards that the town will accept—along with a few naughty ones.

Healing.  This year I learned how to manage without psychotropic medication.  I developed my Bipolar Bad-Ass Training guidelines.  I graduated from the Silver Sneakers water exercise class to the deep water, high-powered, water aerobics class.  I pushed the envelope of my reading disability and actually finished eleven whole books this year.  I’m learning how to be a woman alone without being lonely all the time.  I’ve moved past my fear of cooking and can now fix supper for myself every night.  I’ve started again on the weight loss journey, losing 12 pounds since my visit with the allergist at the beginning of December.

It’s an important practice to remember all the healing this year brought, all the hard work and dedication I put into it.  The illness always grabs center stage.  The loss of Will, the scrambled routine, the swamping thoughts tear down self-worth and confidence.  It’s so easy to see only failure.  So, remembering the success and joy play a vital part in bringing reality back to true.

Saying Good-bye to my dad on my terms.  I am deeply grateful that I was able to spend so much time with my dad in his final days and participate in his funeral in a meaningful way.  It was a gift.  Just as easily, my illness might have flared like it did this past Christmas, incapacitating me and keeping me from any human interaction.  Frankly, I expected to be a nut case during my dad’s rituals, and the stress did eventually cause an episode.  But I was fully there when I most wanted to be.  A miracle.  A prayer answered.

These are just a few of the gifts the Heart of the Universe placed in my lap this year.  What treasures did you receive?

Big Brother Addiction

Hi.  My name is Sandy.  And I’m a Big Brother addict.

I believe Reality TV is the scourge of television.  It panders to our lowest animal instincts, serving up people acting their worst and getting famous for it.  But, America loves a train wreck, and watching people behave like two-year olds in dangerous grown-up bodies seems to be the wreck of choice.

I, alas, am no exception.

I started watching Big Brother the summer after I moved home to Marshalltown.  I was still loopy from ECT treatments I had that winter, and changing medications every two or three months.  I was not in my right mind, okay?  I couldn’t help myself.

Cast of Big Brother, Season 13

I don’t know about other reality shows (because I don’t watch them), but Big Brother puts people in a pressure cooker, then records the results for all the world to see.  Players start out with integrity and compassion, but over the course of the summer, lose that to the drive to survive in the game.  They forget they’re playing a game, and take the posturing and manipulation of others personally.

And then the stress just gets to folks, so emotional outbursts and fights become more common as the season advances.  Some players enter the game with every intention of lying and cheating their way to the end, but the surprising friendships they develop with other players completely changes their strategy.  Alliances form, dissolve, and reform.  ”Show-mances” develop, romantic relationships squeezed out by all that forced intimacy.  It’s all very human.  And fascinating.

This past Thursday night, my favorite player got evicted from the Big Brother house.  Jeff Schroeder first played Big Brother two years ago.  He developed a show-mance with fellow player, Jordan Lloyd, which was chaste (Jordan would only let him kiss her on the cheek) and sweet.  He sacrificed plays in the game for her, and she faithfully supported him.  Their romance continued off-screen, and Big Brother invited them back this season.

Like the other players in the pressure cooker of Big Brother, Jeff lost his temper, took things personally, and fought hard in competitions.  But, unlike most others, he never lost his integrity.  He talked straight and kept his word.  He stayed loyal to those in his alliance, even when they didn’t act in his best interest.  He continued to treat Jordan with respect, acting as her protector and partner.  Jeff maintained his sense of humor and his perspective, and always found his way back to Center.

I imagine when players recover from the trauma of participating in Big Brother, they must be embarrassed, or at the very least see they’re not quite the kind/honorable/humane people they thought they were.

I imagine some of their parents must wear disguises to the grocery store.  But, when I think of Jeff’s family, I can only imagine how proud they are.  He’s an unlikely role model, a Reality TV version of The Hero.  He was a surprise treasure amidst the train wreckage strewn across TVland, and I wish him well. (Go, Jordan!)

30 Days of Gratitude: Day 30

My computer is a remnant of my old life, before psychotropic drugs, before electroshock, before my world went blewie.  Back in 2004, this iMac was state of the art, and it continues to be a workhorse for me.  There are new-fangled things it can’t do, but I’m not so new-fangled either, so it’s limitations suit me fine.

Back in February, when I launched this blog, I had no idea what I was doing, only that it seemed like the next step in both managing my bipolar disorder and moving out into the world again.  Every day, I sat at my trusty iMac, and ideas for posts came.  I gave little thought to who might actually read my words, only that they were necessary, true and free to travel the cybersphere.

Then, I started to hear from you.  Through my old iMac, I discovered a world of talented, complex people who caught my words as they drifted past and allowed them into their hearts.  I became acquainted with you, then fell in love with you.  Your struggles and joys, your compassion and sincerity, your acceptance and understanding poured from my computer.  I was shocked.  I was humbled.  And I was so very grateful.

As I finish my Gratitude Challenge today, I offer up my deepest thanks and appreciation for those of you who read these words, whether you breeze by or stop and hang out for a while.  Like most things I’m grateful for, this gift of community was unexpected and life-altering.

Namaste

30 Days of Gratitude: Day 23

As of today, it’s been 44 days since my last episode of either depression or mania.  To me, this is a miracle.  The longest I’ve gone between episodes before this is 10 days.  Nine months ago, I was rapid cycling with full swings of depression and mania happening twice and sometimes three times a day.

What’s changed since then?  I’ve been off all medications for seven months.  I’ve worked hard at being physically healthy.  I’ve worked hard at being aware of my thoughts, emotions and reactions.  I meditate every day.  And now, I’m working hard at being aware of my compulsions.

I don’t know why I’ve been given this long, lovely reprieve.  I know the episodes will return.  I’m just so very grateful.

30 Days of Gratitude: Day 11

In 2008, after a couple of years of near-total inactivity, I started walking around the track at the Y.  It was torture.  Every step hurt my feet, my back.  I couldn’t catch my breath.  But, I weighed 300 pounds, and I knew I had to start somewhere.

A few months later I started Water Walking—a slow stroll back and forth across the Recreation Pool (maximum depth around 4 feet).  Then, I added the water aerobics class for seniors (mostly stretching with a little cardio).

I added a second water aerobics class, and then a third.  I started using the weight machines and the recumbent bike.  Now I go to the “Boot Camp” water class with people my own age and younger, and I’ve started swimming laps on the weekends.  Oh, and there’s the Line Dancing class on Wednesday afternoons.

My perception of exercise has shifted radically in the past 3 years.  What drove me in the beginning was the desire to lose weight.  Then I learned what a vital element exercise is in managing bipolar disorder.  And once I stopped taking the psychotropics, I discovered I needed regular exercise to control fibromyalgia and arthritis pain those meds had masked.

Going to the Y has become part of my everyday routine.  I don’t think about it.  I don’t fudge.  I just get up in the morning and go.  This, in itself, is a miracle to me.  I also receive financial assistance, so what I pay for my annual membership is very affordable and a priority in my budget.

Every year I’m asked to write a thank-you note to the benefactors, which I’m delighted to do.  I tell them their generosity saved my life and continues to do so.  I like to imagine that makes their gift seem worthwhile.  It certainly is for me.

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