Across the 8th Dimension

Buckaroo BanzaiDoes anyone remember The Adventures of Buckaroo Banzai Across the 8th Dimension?  Quirky Sci-Fi movie from 1984.  Peter Weller, John Lithgow, Clancy Brown, lots of other great actors.  Half of my vocabulary comes from this movie (Laugh it up, Monkey Boy).

There’s a scene where Buckaroo opens the boundaries between dimensions and drives his car through a mountain.  He proves that many realities exist in the same physical space.  Just find the right side-step and you’re face to face with weirdness.  I understand Buckaroo’s disorientation a little better now.

Tuesday, my mom went to the hospital for an angiogram.  Her docs thought she might have some heart problems and wanted to get a good picture of her blood vessels.  One minute my sister and I were joking with her about our double chins as we waited to start the procedure.  The next minute the doctor was telling us he had no idea why she was near death.

Hospital waiting rooms must qualify as another dimension.  Time functions differently—speeding up when the doctor shows up, slowing down between the five-minute visits inside the ICU.  Several new languages must be learned—Doctor-Speak, Endless Speculation, and the abbreviated answer to “how is she?”.

The senses work differently in this dimension, too.  The colors in the jigsaw puzzle I’m working seem alive, blasting with color.  But the smells in the cafeteria hardly register.  Light ranges from stark fluorescents in the halls to ambient murkiness in Mom’s room. Sounds are muffled—the shush of crepe soles, laughter far away, the gentle few bars of Brahms’ Lullaby over the intercom whenever a baby is born.  It’s all very odd.

Even when I leave the hospital, I’m still caught in its vortex.  I talk to my friends, feed my cats, eat supper, but all done on the wrong side of the dimensional barrier.  I’m wrapped in a space suit of Hospital Waiting Room and can’t quite touch my own reality.  Which seems right.  Moving through dimensions must have repercussions.  I’ll just stay here for the duration and acclimatize.  I’m afraid I’ll be back soon enough.

It Takes A Village

handmand greeting card, collage artMichelle’s post today in The Green Study got me thinking.  She focused on how easy it is to over-share in blogs and wondered if it’s all just naval-gazing from self-absorbed recluses.

Well, that would be me.

My gazing tends to point farther north to what’s in my skull, but I am self-absorbed and self-centered.  I justify this by reminding myself that most people with my flavor of bipolar disorder are living in group homes or institutionalized.  Self-absorption or self-preservation, I can’t tell the difference any more.

The recluse part of me is something I’ve started reframing as healthy instead of pathological.  For years I’ve heard how “telling” it was when I isolated, cut myself off from others, quite reaching out, and turned down social engagements.  My health posse at the time would panic, remove all sharp objects and count the pills in my bottles.  They had good reason.  I did try it once.

But, I’m discovering the joys of reclusiveness.  Well, not joy exactly.  Peace is better descriptor.

People wear me out.  Yesterday on my walk around the neighborhood, I saw a little girl (who didn’t know any better) tease a puppy that was tied to a stake.  She didn’t hurt the puppy, but I could hear the meanness in her preschool voice and the pitiful whine of the puppy.  It made me sick and scared, and I hated myself for not doing something about it.  Something gentle.  Something as easy as walking across the street to talk to her and lay a calm hand on the puppy’s head.  But, I didn’t do that.  I walked faster.

When got home, I was sad and tired, disappointed in myself, and could feel my mood slip/slide like ice over black water.  I made a pizza, plugged in an episode of Fringe, and put on my nightgown—done with the outside world and with people.  Then, my doorbell rang.

A casual friend from swim class and also from my meditation group ferreted out where I lived by Sherlockian means—knowing my truck, seeing where it was parked in the apartment lot, peeking at the collaged sign on my front door.  She was hesitant, cautious about showing up unannounced.  She said she had something for me.

It’s always disconcerting when someone rings my doorbell.  Firstly, it’s rare.  Secondly, it’s usually politicians or the landlord.  Thirdly, I’m usually in my nightie.  My little apartment is private space where Henry, Emmett and I weave a cocoon of safety.  Company jangles us.  I may not dash under the bed like Emmett, or growl like Henry when the doorbell rings, but I understand the sentiment.  Still, I try to shift gears and put on a welcoming face.

My friend came back from the parking lot with a big box.  She said her mother ran a food bank in a neighboring county.  ”I told her about you,” my friend said, “that you live on Disability and don’t have a pot to piss in.  So, Mom packed a box for you.  I hope you’re not offended.”

What is a person to do with such startling kindness?  I took the box, thanked her, introduced her to Henry and Emmett (who didn’t dive under the bed), thanked her again, and watched her leave.  I stood in my kitchen, touching the box, feeling my friend’s true regard and care.

handmade greeting cards, collage artThere are people in my life who love me, but there are others who actually like me.  They value me (their word, not mine).  They want to support me and are generous and bold in their affection.  I don’t say this because I think I’m unloveable or valueless.  When folks first get to know me, they usually like me—I’m not without a certain amount of charm—but, generally, it doesn’t last.

If folks hang around long enough or get closer, the bipolarness sours their regard.  Rage, judgment, neediness, inconsistency, intolerance have chased away friends and family.  Shutters bang closed over their faces and conversation floats on the surface like dead fish.  I wanted to say to this new friend, “Thank you so much for your gift, but if you get any closer your sweet desire to be of service will shrivel up and die.”

But, I didn’t, because, sometimes, it doesn’t shrivel up and die. Sometimes, people get their bearings and decide the hassle of me is worth it (also their words, not mine).  Sometimes they’re willing to dance with me until we find our rhythm.  I have a precious few who reaffirm their commitment when I get in this mood, who will stick with me when society at large is too jarring.

People are hard.  I’m hard.  The effort it takes to balance naval-gazing with true personal interaction seems herculean at times.  But, we make these gestures of love at each other, little acts of kindness, drive-by thoughtfulness.  So, I guess I’ll keep blogging about both—the belly button lint and the food boxes.  And maybe on my next walk around the block, I’ll be able to squat down by the little girl and pet her puppy.

A Few Days of Gratitude: Sheryl Mae

My sister will probably cry when she reads this.  But, I think she’s used to tears when it comes to me.

Once upon a time, there was a little girl who wanted a little brother or sister with all her heart.  She wanted something of her very own to love and take care of, to hold and teach, to protect.  Soon, she got a little sister, and the girl was thrilled.  After a time, however, the baby sister started to get contrary and moody.  The little girl didn’t care for that.  The baby sister stopped listening to the little girl’s instructions and squirmed out of her arms.  The little girl did not like that at all.  And because she was growing into a teenager, she decided she really didn’t want a baby sister after all.

But a heart-wish like the girl’s doesn’t go away that easily.  The ribbons of love and protection that had grown around her baby sister stayed strong and rainbow-bright.  She pretended not to care.  She tried to be mean.  But she couldn’t keep it up for long.  For that wasn’t the girl’s nature.

Time and distance separated the sisters, but the ribbons never broke.  When the baby sister was in danger, the girl knew it.  When the baby sister needed help, the girl provided it.

Soon, she discovered her old heart-wish was still alive in her.  All the wishes and hopes she once dreamed for her little charge, all the love and care she once gave, lived in her.  They spooled out in silks and satins of ribbons.

When the younger sister fell into mortal danger, the girl rushed to save her without a second thought.  Some parts of her little sister couldn’t be saved, and that was almost more than the girl could bear.  But, she gathered up the pieces and carried them home.  She called on everyone she could think of to come help patch her sister together, giving them tasks and keeping them busy so as not to despair.

Round and round she wove her bright ribbons until the pieces of her sister knitted together.  Round and round they twined, binding all the helpers together.

When the little sister blinked and opened her eyes, all she saw was the rainbow, and all she felt was the cocoon.  It was familiar.  It was right.

It was her sister.

Haunted Houses

It’s here.  The next episode.

The elevator doors opened, and I rode it down into that familiar darkness.  Time to see how the training, and planning, and digging in play out when all the rules change, and I turn from Jekyll to Hyde.

I felt the change start on Friday while I did my laundry.  I’d identified my mom’s house as an eating trigger already, so I had a plan.  While my clothes sudsed, I’d get my bike out of the garage and ride around town.  I even brought a little tire pump in case the tires were flat.  They were.  And the pump didn’t work.  I put the bike away, went back into the house, and saw the Fiddle Faddle.  The rest was a blur of food.

I broke the surface occasionally during my feeding frenzy.  I told myself, “You don’t have to do this” as I reached for the container of cookies in the freezer.  But, that voice was wee and far.  In retrospect, I had choices.  I could have taken a walk or gotten in my car—anything to get away from the house.  But, those weren’t choices then.  They would have been inconceivable.

I drove from Mom’s straight to another trigger house where I lived with my friends for two and a half years while I was at my worst.  Whenever I visit, I feel the shades of those years gather around me.  I feel that other me wanting to rise up.  When my friends go out of town, I take care of Gracie, their dog.  Again, I had a plan on how to dodge the ghosts.  Instead of “keeping Gracie company” I’d let her outside, take her for a walk, check her food and water, then get out.  No hanging around with the big screen TV and the pantry full of trigger food.  Uh uh.  Get in, take care of business, get out.

All plans flew out of my head when I walked in the back door.  All the old behaviors reared up and took over.  Yesterday, I even brought over my own food to try to keep the ghosts at bay.  They just turned out to be appetizers.

Even while I berated myself for being possessed, I could still watch with curiosity.  I watched how the exhaustion inherent in depression seemed to grease the compulsion’s skids.  I watched how all the self-talk that worked while I was stable made not a dent in the compulsion now.  I watched as the compulsion suddenly stopped, the frenzy ended, and I quit eating.  The good news was that in my own apartment, I didn’t feel the compulsion to eat.  At least for the time being, “that house is clean.”

Curiosity and information will lead to different strategies.  It seems clear I need to stay away from these haunted houses for the time being.  Perhaps I need to do my laundry at the laundromat this summer.  Maybe I can’t take care of Gracie for a while.  The eating rituals that have developed in these houses need to be broken and the ghosts exorcised.  That will be my homework.

In the meantime, I have one more day with Gracie.  Once again, I’ll try to stick to business and get out of the house before the specters find me, before depression and compulsion conjure phantoms too strong to escape.

I’m on an Adventure.

There’s Gotta Be a Pony in Here Somewhere . . .

What a week.

I’m workin’ it, though—trying to ferret out a few gifts and bright bobbles of gratitude in the crap-storm that has yet to let up.  Seems important to mark these to keep some sort of perspective.

  1. I’m grateful that the worst of the pain from physical therapy let up on Wednesday.
  2. I’m grateful that my mind sent me on a little fantasy vacation with Captain America, in a New York city loft that needed its windows reglazed, with Linda Ronstadt’s rendition of “Someone to Watch Over Me” playing in the background.
  3. I’m grateful for my Mom handing me $40 for no reason.
  4. I’m grateful for my friends at TOPS who understood why I just couldn’t step on the scale yesterday.
  5. I’m grateful for the way the Y’s pool buoys me up and makes me feel strong and graceful regardless of the storm.
  6. I’m grateful for the moments when my mind lets go of the internal horrors, for the psycho-spiritual muscle I’ve grown that enables me to wrench my brain away from the monsters for a time.  I need those breathers.
  7. I’m grateful for my sister.  Even though she has her own crap-storm to deal with right now, she’s always there for me.
  8. I’m grateful to have a vehicle.  When the urge to bolt takes over, I can.
  9.  I’m grateful for another day.  Sometimes I’m not, so being able to find the gift in today is gift enough.
  10. I’m grateful for this platform, for readers who feel like intimate friends and the kindness they practice on me.  Meaty, sustaining kindness.

I am grateful.

Yes, I am grateful.

The Bad-Ass is Back

After almost three weeks en-episode, the Dark Visitor who took up residence in my head drifted on to other haunts today.  It felt exactly like a someone opened a window in my brain and aired the place out.  Colors brighten.  Sounds sweeten.  The body breathes a sigh of relief.

My first hint came while ripping through the deep water this morning.  There’s nothing like karate kicks and ab crunches to bring the Bad-Ass grin to a girl’s face.  I may take up double space on land, but in the water I’m a svelte powerhouse with Zen control.

At our TOPS meeting, I was shocked to find I’d lost weight this week.  After three weeks of relentless compulsive eating, I expected another week of gains.  I chalk up the loss to Grace and a balancing of the gain I had last week.  A person can’t take the numbers on the scale too literally—the body is always in flux.  But, I was reminded of why I joined TOPS last December.  I wanted a place to rest and receive support during episodes when I couldn’t control what I put in my mouth.

And when those episodes ended, I wanted folks who would help me jump right back on the horse.  My group does just that.  They’re the best wranglers in town.

Later, I drove to my mental health clinic to chat with my therapist and pick up my medical records.  The HIPAA regulations seem simple enough—any patient has the right to request a copy of their medical records.  A fee may be levied.  Unfortunately, therapy notes aren’t covered by the HIPAA guidelines.  And third-party records (another provider’s information that may also be in the chart) cannot be copied.

Luckily, my current shrink and the therapists who have taken care of me over the past six years decided I could handle reading my therapy notes.  So, I received copies of those.

And Michelle, my current therapist and head cheerleader, sat with me and figured out how I could contact all the hospitals, clinics, and former docs who hold the rest of my mental health history.  I left the clinic feeling clear and sharp.  I had a plan.  I always do better with a plan.

Bipolar episodes are never easy, but this last one seemed particularly grim.  I’m getting used to them lasting longer.  I’m getting more skillful at separating myself from the grue in my head. But there’s always a point in the battle when things can’t seem to get any worse—and then, they do.  This time is was the maintenance on my dad’s truck that totaled over $900.

But, my sister and brother jumped in with their swords drawn and slayed that beast for me.  Thank the gods for the folks who’ve got my back!  I’d forgotten basic Action/Adventure plot structure or I would have seen them coming.  The Crew always pops out of nowhere in the nick of time to keep the warrior from getting hacked to pieces.  My Sibling Cavalry.

So, with a deadly roundhouse kick, a spirited steed, a savvy crew and a plan of attack, the Bad-Ass is definitely back.

Callinda Launch Party

Outside, the day was a little gloomy with patchy rain.  Inside, love burned bright.

My cousin, Janet, was the first to arrive as she was on her way to work.  We grew up together, her family’s farm a mile away from mine.  Life happened, and we lost touch.  But, here she is—the same loving, hilarious, take-no-prisoners force of nature she was when we were kids.  Janet is the perfect example of what I’m trying to do with my life now—pull together past and present to open a door for the future, leave nothing behind but hold it all lightly.

The gals in my meditation group encouraged me to do a reading from Callinda at the party.  They were a little surprised I hadn’t planned on it, seeing as how the whole shindig was about finishing the thing and getting it “published” on this blog.  So, I dug out my glasses and tried to find the most hair-raising section—just to tantalize those who hadn’t read it yet.  Look how attentive they were—even the kids listened!  If I hadn’t already felt surrounded by love, I surely did then.

All the party details fell into place like a jigsaw puzzle.  Kris Davison prepared wonderful, tasty food, my sister took over as dish washer/photographer/hostess so I could mingle and visit with all 35 guests, we almost had enough chairs most of the time, and I’d made enough Quote Plaques for everyone.

For me, this party was a way to thank everyone who supported me while I worked on Callinda—and, at the same time, struggled to manage my bipolar disorder.  These folks gave me perspective, laughter, money, coffee, hugs, meals, shelter and cheerleading.  They took care of my Dad, exercised with me, meditated with me, accepted me as I was, invited me into their homes, paid my way, gave me work, introduced me as their friend, took me on dates, cheered when I lost weight, and stayed when others left.

I wanted to thank them, and yet they brought flowers and gifts along with their support and love.

Whenever I would wander into a conversation or plop down next to someone taking a break from grazing the food table, they would say, “What a neat bunch of people.”

Yes, they are.

Double Whammy

I didn’t really think this whole surgery thing through.

I planned on the discomfort, and the limitations, and the loopy effects of the pain medication.  I stocked my cupboards and laid in supplies of crossword puzzles and movies.  I lined up folks to help me with chores.  But, I really didn’t consider the possibility of having a bipolar episode during this recovery period.  Oops.

This morning I woke up with depression. It exaggerated all the ickiness—my belly hurt more, the narcotics spun me in tighter circles.  But, worse than that, it blew apart my Zen space.

Even though I’d been nervous about the surgery, I purposefully cultivated peace going into it.  As a result, a solid level of acceptance and compassion came home with me, a restfulness in the Now of each moment, gentleness in acknowledging my limits.  Pain was simple and easily tended to.

The depression turned all that calm into suffering.  It twisted my thinking just enough to introduce feelings of abandonment and isolation.  It made me doubt my family and my friends.  It did what depression always does—focused on the negative and took me prisoner as it dove into the dark.

I’m working with it this afternoon, using my mantra to get some distance between me and the faulty thinking (It’s the illness talking, not me.  It’s the illness thinking, not me…).  I’m making cards and cutting bits out of magazines to keep the forebrain distracted.  And each time the depression shoves me into the future or wallows in the past, I come back to This Moment.  Right now, I am comfortable enough and safe enough.  There’s nothing I need to do, no one I need to answer to.  I’ve got a hankering for cherry pie.  I’ll call a friend and see if they can take me to Perkins later.  One step, one need, one healing at a time.

Home from the Hospital

I just wanted to post a quick one before I sink into my nest for the day.  Surgery went well.  All the professionals have told me today will be the most painful, so I’m chugging my Percaset, hugging a heating pad, and gathering the cats around for a movie.

A huge thank you for everyone’s prayers and good wishes.

Back to my room from recovery.  Feeling no pain at the moment.

My sister and mom and the always-lovely post-op hairdo.

Cheryl & Tom came to watch Criminal Minds—our Wednesday ritual.

Walking the halls in my attractive ensemble to wake up the guts and move gas.

Waiting Like a Bad-Ass

Tick Tock.  Tick Tock.  Time seems to be creeping toward Wednesday—my day to ride the Anesthetic Express to Scalpel Town.  While I’ve gotten my surgery jimjams more under control, this endless waiting is a whole different kind of mental torture.  I needed a strategy, a plan.  Time to fall back on my Bad-Ass Training.

Clean Eating—I can already feel my focus unraveling around food.  Since I won’t be able to attend TOPS for a few weeks, that accountability is gone.  Plus, anxiety has pushed all my compulsive eating buttons.  And then there’s the horror of being stuck in my apartment without means of escape.  I’m forbidden to drive until I regain the core strength to handle surprises in traffic.  And since I have to use a step to get up into my truck, it will be awhile before I can gird my loins enough to manage that.

You may wonder how being immobile applies to food.  Right now, the anticipation of being trapped pushes me to RUN.  I’ve driven to Ames and Des Moines more this past week than I have in months—because I still can.  Part of the escape valve is eating out—fast food, slow food, coffee shops, movie popcorn.  Then, when I really am homebound with no way to bolt, that anxiety will drive the compulsive eating.

It’s time for me to do some serious meditating.  Time to breathe and bring my attention back to what’s going on in my body and in my head.  Breathe and Watch.  Not only to keep from packing on the pounds, but to stay sane.

Also, Mom and I are grocery shopping today to stock up my cupboards.  I will choose wisely with an emphasis on simple and nutritious.  I may fondle the Cheetos, but I won’t bring them home.

Strength and Stamina—I’ve been paying attention to the daily activities I may not be able to do once I’m home from the hospital and figuring out options.  I’m forbidden to lift anything over ten pounds, bent, or stretch.  So, I won’t be able to get my Brita water pitcher out of the fridge, or make my bed, or reach my coffee filters up in the cupboard.  No cooking in the oven, or lifting the big glass dish that holds all my collage jewelry bits, or bending over to tie my shoes.  As I come across these problematic items, I try to rearrange and accommodate (I mean, there’s no way I’m giving up coffee for six weeks).

I won’t see my water aerobics class again until May, so I have to focus on what I can do.  Both my doc and the OB/GYN nurse said walking is good.  Post-op it will wake up the bowel, help prevent blood clots and clear the lungs.  A few minutes up and down the hall several times a day while I’m in the hospital, then “as tolerated” when I get home.  Maybe only a slow creep to the corner and back the first few days.  The important part for me is to have a plan and some kind of structure.  My routine will be out the window, so I need to develop a new one.  Walking a little bit several times every day will be part of it.

Set Priorities—First priority post-op will be Pain Management.  I’ll take my narcotics like a good girl so I can get restful sleep.  Next comes Healing.  That requires good nutrition, lots of water, movement and time.  I know I’ll get impatient about my limitations, but healing from this big of a surgery will take months.  I have to keep that thought in my forebrain.

Next on my priority list is Distraction.  This will be a little different from the way I use distraction during bipolar episodes.  Post-op I need to find ways to fill the days while I heal.  With this rationale, my compulsive spending broke free, and I bought a ton of movies on eBay and Half.com.  It’s hard for me to feel too bad about this since I now own most of Christian Bale and Hugh Jackman’s films.  I’ll feel worse when it’s time to pay my Visa bill.

As soon as I’m able, I get back to writing my stories and working on my collage cards.  Writing and art will take a back seat to these new priorities, but they won’t go away.

Secure Back-Up—This is probably the most important aspect of Post-Op Bad-Assery.  I will need help doing basic chores and getting around.  I will need people to make me laugh when I’m sick of myself.  And I’ll need comfort and support from the folks who love me.  I’m blessed with all that.  My best friend plans to come to the hospital Wednesday night so we can watch Criminal Minds together.  I’m already getting cards from my TOPS friends cheering me into surgery.  Blessed.

It feels really good to have a plan in place.  Adjustments will have to be made, I know, but I’m not flopping around in a panic anymore.  I can do this.  All is well and will be well.

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