Whiplash

Secretaries, handmade greeting card, collage art

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I get to the hospital this morning, after pouring out our family’s latest saga here, and I find my mother with monitors, and O2, and IVs like a regular hospital-type patient intent on getting well.  So I lean in to ask what might be going on, and she pats my arm.

“The doctor said I had to take care of myself.”

Out I go to the nurses’ station.  Come to find out Mom got pretty uncomfortable overnight, what with no pain medication and no oxygen to easy her breathing.  She decided suicide wasn’t worth it.  Then, her doc for the past thirty-five years read her the riot act.  No one seems to know exactly what he said, and Mom’s not telling, but I have never seen her so compliant.

I watched with my mouth agape when the nurse asked how she felt and Mom’s answer was, “Fine.”  She took her meds, ate a little breakfast, worked without complaint with the Occupational Therapist.  All of a sudden the Dying with Dignity bus got rear-ended by a semi full of Let’s Get Better.

I’m not complaining.  Okay, maybe I am.  As a former nurse and spiritual guide, I should know how to drive this vehicle.  I can balance the fight for life with supporting one’s final wishes, but the drama on this particular highway is of pea soup quality.  By the time I left the hospital today, my new motto was “Let The Professionals Figure It Out.”

With my sister’s blessing, I’m taking a day off tomorrow.  I’ll visit with my meditation buddies in Des Moines, see the new Star Trek movie, and go to my post-hospitalization support group.  No freeway pile-ups, no sudden lane changes.  Just a day to loosen up enough to take the next hit.  Because another one is bound to come.  And this highway is crazy enough without adding my own special brand.

Remember Drivers, hands at 10 and 2.

That’s All, Folks

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After a week in ICU, Mom was getting better.  Yesterday, we moved her into a regular hospital room with a nice view.  She was alert and making her wishes known.  Unfortunately, her wish was to die.

She told the nurses to take away her heart monitor.  She refused food and all medication, even a Tylenol for pain.  When her oxygen saturation levels dropped, she refused oxygen.  At those low levels, her brain will become oxygen-starved soon, and after that, the rest of her organs.

As always, Mom attended the details.  She waited until my brother left yesterday morning before starting her refusals.  She wanted him on the road and unreachable.  She will take a few sips of ice water, but makes us fill the cup where she can watch.  She doesn’t want us slipping her any medication Mickeys.

As someone who has tried suicide, I should understand this better.  As someone who knows first hand my mom’s fierce need for control, I should have seen this coming.  Maybe it’s just that we spent the last week wrenching her back from an accidental death, watching in amazement as her 88-year-old body rallied in ways that shocked the medical team.  Strong-willed, she just chose to point that will in a different direction.

My sister and I tried to wrap our heads around this, flipping from anger to despair to resignation.  But, my nephew reminded us that this is what Mom wants, this is her choice, and that all we have to do it stay out of her way.  I can do that today.  I can watch Mom meet death the way she met life—on her own terms.

Sand

Better now.  There’s a familiar, bittersweet sense of starting over—relief in being able to return to simple, daily activities; sorrow in seeing all my little ant-hills of effort scattered.  A collective sigh heaves out of my body.

This is the Work.  To keep coming back.  To pick up one grain of sand and start building again.

I take inspiration from the monks who build their beautiful mandalas in the sand and, when they finish, sweep them up.  The juice is in the process, not the product.

I want results.  I want to change my life.  I want.

But, wanting is tangent to the door before me.  I walk through.  I squat.  I look for the sand.  My finger reaches for a grain.  I start again.

A Small Life

handmade greeting card, collage artI met a friend the other day for coffee.  It’s a rare occurrence these days what with my Zero Money Initiative.  I felt rather posh, actually, pumping the Sugar Free Vanilla Syrup.  Simple pleasures.

My friend was in town with the sad task of attending to his late mother’s estate, so we talked about executor duties and sorting through a lifetime of accumulated stuff.  But, he needed distraction from all that, so we quickly moved on to other topics.

What I discovered while talking to him is that I don’t know much about the wide world anymore.  I don’t read the newspaper or watch TV.  The only news I see is what zips by on Yahoo as I scroll through to my email.  To keep my stress low, I avoid unpleasantness such as last week’s discussion topic at our Unitarian Universalist gathering on Human Trafficking.  I have enough horror in my life as it is.

As my friend and I talked about Illegal Immigration and The Economy, I wondered for a bit if I was failing in my duty as a citizen, if I should try harder to keep up with current events.  But, really, does anything change that much?  There’s a war somewhere—probably more than one.  There are groups and individuals doing horrific things to other groups and individuals.  Congress must be fighting over something or other.  And I’m sure we’ve discovered new and exciting things in space and in scientific research.  People carry out kind and inspirational acts in obscurity.  The environment is still threatened.  Babies still get themselves born.  I don’t think I’m missing all that much.

Talking with my friend did show me how the parameters of my life have shrunk.  I move mostly within a few blocks of my apartment, with occasional excursions farther afield, and the now-rare trek to The Big City.  I spend most of my time alone, with a daily dose of polite chit-chat at the Y or the library.  I facilitate my two meditation groups and plan one or two deeper interactions with friends or family a week.

I exercise, eat, write, make a little art, watch some DVDs from the library, and read.  I talk to my cats.  I put gas in my truck and get groceries.  I look at the stars at night, and I listen to the rain on the sidewalk.  I don’t really go anywhere or do anything.  And that’s just fine.

I used to miss doing stuff—going to concerts and plays, eating at interesting restaurants, taking classes.  I used to worry about being “productive,” about contributing to society and finding meaningful work.  I used to gobble up information.  I used to crave interesting people with views and lifestyles different from mine.  I used to want a lot more.

With a small life, much of the wanting falls away.  At least it has lately.  And without the wanting or the stress of a larger life, my rapid cycling seems to find equilibrium a little easier.  The cycles still happen, and the symptoms are just as rabid, but I’m granted a little more time to breathe between swings.  Who knew that simplifying to the point of nothing might be the best strategy?

Well, I guess those Zen monks knew.  But, who wanted to listen to them?

My Cyber Life

handmade greeting card, collage artThese days, what with my Zero Money Initiative in place, I spend most of my time at home on my computer.  And I’m finding a whole new life there.  It’s Pinterest, really, that’s sucked me into this Ether World.  I’ve found dozens of Pinners who share my interests.  And since my taste wanders all over the place, there’s a lot to keep me enthralled.

There are the nerdy fan-folk—the Tolkein aficionados, the Trekkers, the Joss Whedonites.  I’m in Nerd Heaven, wandering through all the rare photos, video clips, jokes and articles about my TV shows and movies.  There are the science puns, and inside jokes, and cross-over weirdness that combines Star trek with Firefly and Sherlock Holmes.  My geekiness runs rampant.

Battle Cry, The Hobbit, Thorin OakenshieldThen there are the serious armies of movie star fans.  Any male actor, living or dead, generates a plethora of appreciation (Female stars get plenty of attention, too, just not so many shirtless photos or comments about fainting).  Here, I have found my obsessive/compulsive, delusional tribe—women all over the globe tipping the scale from fan to stalker.  I breathe a little easier knowing I’m far from the craziest end of the spectrum here.  I’m actually rather refined and discriminating in my male appreciation.  Tasteful, even.  Ahem.

sheep, IrelandI can explore my love of Ireland and dream about going there by connecting with Pinners who are either from Ireland or who have shared their vacation photos.  I can listen to the music, meet infamous sons and daughters of the Eire, and learn the country’s history.  All the beautiful sites, the people, the festivals—they let me taste of the Emerald Isle while I scheme about how to get there.

endangered species, animalsThen, there are all the boards devoted to nature—weird and gorgeous wild animals; amazing forests, rock formations, fauna and flora.  There are Pinners gathering information on preservation, animal abuse, conservation, and every aspect of green living.  I’m constantly amazed, shocked, inspired and delighted by all these lovers of the world.  I can indulge in my love of elephants and skunks.  And there’s no end to the folks who love cats—great and small.

Buffy the Vampire Slayer, TV, Joss WhedonMy cyber and material worlds are starting to mix, now.  I’m spending more time at the library searching for things I saw on Pinterest—books on visiting Ireland and England, movies like “War Horse” that I thought I’d never watch (but found out Tom Hiddleston/Loki  and  Benedict Cumberbatch/Sherlock Holmes are in it).  I picked up the first season of “Buffy the Vampire Slayer” to watch some early Joss Whedon, and checked out a great mystery novel by Tana French on a Pinner’s recommendation.

I’ve heard Pinterest described as a horder’s dream come true.  A person can collect all their favorite stuff without taking up any space (or creating those scary towers of books, papers and clutter every proper psycho-killer’s home requires).  But, for me it’s gone beyond that.  Yes, I like to create my boards with a certain amount of flair and artistry, but I look forward to learning something new, digging deeper into a topic, sharing a funny video that I hope will make others cry and lose urine like I did.  It’s a new way of interacting, a new kind of community-making.

And it makes me happy.  That’s something to stick a pin in and hang on the wall.

Workin’ It

As with most things I do when I’m stable, I’m totally rocking my Smart Car Quest—walking to the Y, saving all my errands for one trip, eating at home, keeping a list of things I want in order to delay gratification.  And just as I hoped, the Universe is conspiring to assist.  Yesterday, a friend offered to let me use a spare phone she just happens to have on her service plan.  She may also have a little job for me keeping a website up to date.  And as I promised, I’m staying open and accepting of the gifts coming my way.  With gratitude.

It feels so good to take back some control over my life.  Even if this is as fleeting as my mood, a few days of determining my own destiny helps me remember that being bipolar doesn’t have to equal being helpless.  Or alone.

Here’s a shot of my front door, where I stick all things inspirational.  Bruce is still coming to me in my dreams.  And I’ve added my own version of the typical work safety sign.  I’m aiming to put that puppy into the double digits. Because…

I’m on an Adventure.

And Now For Something Completely Different

Monty Python, foot, illustrationThe mental weather finally cleared.  Time once again to take stock and adjust accordingly.  This time the task seems even bigger, but here goes.

The pattern of my life over the past several years has been one of survival, doing whatever I needed to get from one crisis to the next.  When disaster struck, I slapped on a band-aid and crossed my fingers.  I worked with my compulsions, hoping I could loosen their grip, but only managed spotty success.  Compulsive eating and spending still sabotaged any effort to make lasting changes in my life.

But, I have to keep trying.

Living in crisis mode and learning to live in the Now blocks thoughts of the future.  Most of the time, this is a good thing.  To survive, one needs to focus on the immediate threat, not on planning the post-battle celebration feast.  Living in the Now keeps fear at bay and allows for gratitude in what’s happening in the moment.  Moving with the flow of life and recognizing synchronisity are spiritual tools I need in order to dance with the wild swings of my bipolar disorder.  But, I think I need to do more than dance in a circle.

My friend, Rob, who visits here sometimes, said something a while back that stuck with me.  He and a friend were talking, and his friend said, “It’s kinda foolish to set goals but makes sense to head off in a direction and see where it goes.”  I love this gentle approach.  And I think it’s time for me to point myself in a direction.

I drive my dad’s 15-year-old Ford truck—a huge, sturdy, gas-inhaler.  It won’t be long now before it’s old innards start needing more resuscitation than I (or my family) can afford.  It’s still spry and agile, but the last time I got the oil changed, my mechanic mentioned gaskets and seals in an off-hand, “not-to-worry” way.  I immediately shoved the information aside.  I’d slap a band-aid on that when the time came.

But, what I’d really like to do is get a new car—a small, inexpensive, fuel-efficient one.  I’d like a car that didn’t cost me $70 every time I visited the gas station or was ready for the four-wheel nursing home.  Specifically, I want a Smart Car.

Smart CarFor someone who lives from Disability check to Disability check and relies on regular hand-outs from family and friends, this seems like a true fantasy.  I tried living without a vehicle for one summer, and I did all right while I was stable.  But as soon as I started to cycle and the walls closed in around me, I needed a way to escape.  Running down the street didn’t seem to work.  I know I need a vehicle of some kind to keep the heebies from jeebying off the charts.

So, how do I do this?  How do I save money when my illness can push me to spend every cent I have?

Yesterday, I sat down to map out a plan, knowing full well that in a day or two or three, said plan might as well be written on toilet paper.  Bad-Ass Training gave me a little hope, though.  I’ll do the best I can wherever I am on my mental spectrum, try to put some structure in place that can carry over to the crazy times, and take a few definitive steps now.

The first thing I did was cancel my cable and telephone land line service.  This will give me $70 to put in my car fund each month (once I pay off the termination fee).  I’ll go back to walking as much as possible (spring is bound to come soon, right?) to save on gas.  But, most importantly, I’ll focus my awareness on my compulsive spending and the impulse to bolt.  Not that I haven’t tried this before.  But, in order to save money, I have to try not to spend it.  And where I spend most of my money is on those rabbitty bolts out of town.  I’m hoping that having a goal to focus on will help.  And maybe coming up with some other options.  I will see my therapist on Wednesday, and we’ll brainstorm.

I have no idea if this will work.  But, I have to try.  Like Rob’s friend said, I’ll head off in this direction and see where it goes.  Maybe I’ll find some synchronisity and flow along the way.  I’ll let you know, because really…

I’m on an Adventure.

Getting Better

handmade greeting card, collage art

I stood at my kitchen window yesterday, watching the morning come.  Prickly, my brain hot and sore, vague urges and angers surfaced in bubbles to pop, causing an instant of relief and splatter like a crime scene.  I felt the craziness in me like a wild animal, pluck-pluck-plucking at my soft tissue with one, long claw.

I watched a car go by on the street.  My mind mused:

I thought I’d be better by now.

And a Pandora’s Box opened.  Beliefs buried underground rose.  I expected my symptoms to lessen once I got off medications.  I expected my compulsions to ease as I worked on mindfulness.  I believed in a life where I’d be better.  I planned for it.  But, my symptoms are the same.  My compulsions are the same.  Mindfulness and being medication-free only help me See.  I’m never getting better.

I’m never getting better.

After a moment of self-pity, I looked back out the window.  Gray now.  The tree, the sidewalk, the patches of snow.  Another car went by.

Ah, the next thought settled on me.  That’s what all this has been about.

Revelations come in waves, for me.  They wash up over me, I get wet, then they recede.  I dry off and forget about them.  Except they leave sand in my shoes.  The next wave comes.  This one is stronger, knocks me off my feet.  But, it too, recedes, and I dry off again.  Each wave pushes me a little further up the surf line until, finally, I’ve altered my path enough to stay out of the water’s way.

The waves are coming fast now.

More and more, I’m being called to live Here and Now, to inhabit the person I am Now.  Not planning a life for someone who doesn’t exist.  It means respecting the fact that people exhaust and trigger me, accepting that food comforts and fantasy delights me.  It means embracing the changeable spectrum of my capacity, knowing that one day I can create a ritual full of symbolism and spirit for a group of 25 and the next day can only take a shower before going back to bed.  It means contemplating solitude and finding peace there.  It means respecting myself Now—the limits, the talents, the inconsistencies.  It means being willing to listen to who I am Now—what I need, what I want, what fills me up.

I don’t really know who I am Now.  I know who I was.  I know who I should be.  I know who other people expect me to be.  But, I’m willing to stand at my kitchen window until I find out.  Or until another wave nudges me in the right direction.

The Good Fight

handmade greeting cards, collage artSo, I’m ducking and weaving with this whole idea of letting Life be instead of knocking it to the ground.  It’s a weird place for me, the Ultimate Gnat’s Ass Detailer.  My modus operandi is to schedule, make lists, revise the schedule, scrap the first list and make a new one.  I’m never comfortable without a Plan.  But, see, after all this time, the Plan is ingrained.  I know what works and what doesn’t as far as my bipolarness goes.  And there will never be an Answer. There’s no alchemy, no incantation of To Do lists that will halt the rapid cycling or turn me into someone who can work a day job.

What I’ve got are a few tools to help me be the healthiest I can be in the moment—daily exercise, an emphasis on fruits and vegetables, distraction that does no harm, and an attitude of skepticism when it comes to what my brain says.  That’s all really.  Turning from “what’s the plan” to “what do I need now” is incredibly hard.  I’m giving up my fantasy of the future.  But when I take a breath and notice the details around me right now, that unlikely future loses its glamour.

Yesterday, walking around the track at the Y, I had to dodge clots of teenagers.  Bored from watching the girls’ volleyball tournament, they hung out around the free weights or wandered aimlessly back and forth across the track, not paying attention to the runners and walkers.  Several times, I had to gently push them aside as I marched past.  One girl stopped right in front of me and I had to straight-arm her out of my way to keep from falling.  But, no one fell.  No one stumbled.  No collisions or recriminations.  No anger or scolding.  Just paying attention and making adjustments.

And then there was that golden, winter afternoon light that shot through the high windows and kissed me on every lap.  Sweet, blinding sunlight for a moment.  A flash of warmth on my face.  A gift, if I only turned my face toward it.

Of course, there will be backsliding in my acceptance of moment-to-moment life.  Last night I rebelled.  After seven months of vegan eating, I ordered a Super Supreme from Pizza Hut, ate half of it with a bottle of wine, and watched “Win a Date with Tad Hamilton.”  This, my sad and angry little brain told me, is as close to sex as you’ll ever get again.

Richard ArmitageYes, facing reality instead of living in fantasy is a little hard to swallow sometimes.  I watched Richard Armitage in The Vicar of Dibley on YouTube and cheered.  A handsome stranger falls head-over-heals for an obese, middle-aged cynic—oh, dream come true!  But, dreams like that keep me from living.  There are no handsome strangers in real life, just banter with the happily married help-desk guy at the Y.  Losing weight will not transform me into a young, desirable princess.  I am firmly in Queen territory now, fast approaching Crone-hood.

There are pleasures and delights in my life as it is—a purring, furry presence to wake me in the morning, an iPod full of cheer, train whistles in the dark, the kindness and patience of friends.  This is my life—quixotic and painful with moments of grace.  This is the fight now—to stand side-by-side with my bipolarness and duke it out together for place to stand.  To live together in the moment.

To be real.

A Different Kind of Vacation

handmade greeting cards, collage art

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I’m trying something different.  I’m taking a vacation from my life.

I don’t know if this is brilliant—a true Oprah “Ah Ha” inspiration—or a self-destructive twist of bipolar delusion.  I guess I’ll find out when I’m on the other side of it.

All I can see right now is that nothing seems to be working.  Diet, exercise, meditation, routine, writing, making art—none of these things give me any juice or comfort.  And I’m suffocated by people—the friends I love, the family I love, the communities I’ve joined, the faces I see around me every day.  I can’t fake another conversation, or feign interest, or hold another smile.  I can’t be socially acceptable for another minute.

So, I’m taking a vacation from people and from my normal routine.  I’ll get out of bed when Henry tells me to (he usually pounds on the closet door around 5:00, but some mornings he lets me sleep in).  I’ll pay attention to what seems to need attention.  I’ll see what rises.  I’ll go out, move, watch and listen.  And I’ll see what happens.

This is more than a vacation.  This is coming to terms with my life as it is, not what it might be in the future, not what it was in the past.  It’s coming to terms with who I am, not the girl I was, not who I think I should be, not who I dreamed I’d be.  Maybe this vacation will be a sort of practice in sitting companionably with myself, my real self.  Maybe I’ll finally see her.  Maybe this won’t be a vacation at all, but a new way of living.

I won’t know until I start.

Today.

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